The image above has become symbolic for me. During my second visit to San Angel, a rural area in the State of Magdalena in Colombia, I visited a few families dispersed in the countryside, isolated from the rest of the world, a countryside that hides many patients away from aid,…

Dilia Oviedo Oviedo is 79 years old.  She had 12 children. One was stillborn. Of the 11 children that survived to adulthood, 4 already died from Huntington’s disease. 4 more are currently sick with HD, 2 in late manifest disease. Her husband died in the early 90s, and now a…

I met Roberto and his family when I visited them in April in Juan de Acosta, in the Atlántico State of the Colombian Caribbean coast. Juan de Acosta was considered the second largest HD cluster in the world, although many affected families have left the town in the recent years.…

My first – unexpected – science lecture for medical students in Barranquilla, Colombia Barranquilla is close to Juan de Acosta, the second largest cluster of HD patients in the world (to our knowledge). The prevalence was reported quite a few years ago by Dr. Daza in one of the few…

When we finally got our flight to Bogota from Quibdo, it was late at night. the plane was delayed and we did not take off until after 9pm. we landed around 11pm and we had to be back at the airport at 8am for the flight to Santa Marta. At…

Our first leg of the trip to see HD families took us to a place I had never been before. Choco is an area of Colombia bordering Panama on the North and the Amazonian region in the South. Choco has borders with both the Pacific and the Atlantic oceans, and…

La poblacion de la EH de Juan de Acosta es una de las poblaciones mas grandes del mundo en cuanto a prevalencia de la enfermedad. Hace algo mas de un año visite a esta comunidad en Colombia, donde me reuni con el Dr. Daza, el neurologo que llevaba tratando a…