{"id":215,"date":"2016-10-29T19:49:27","date_gmt":"2016-10-29T19:49:27","guid":{"rendered":"http:\/\/inevitablecompany.es\/donations-are-delivered-to-the-suffering-communities-in-maracaibo-thanks-to-the-barcelona-patients-association-uefh"},"modified":"2021-07-31T17:03:45","modified_gmt":"2021-07-31T17:03:45","slug":"donations-are-delivered-to-the-suffering-communities-in-maracaibo-thanks-to-the-barcelona-patients-association-uefh","status":"publish","type":"post","link":"https:\/\/factor-h.org\/es\/donations-are-delivered-to-the-suffering-communities-in-maracaibo-thanks-to-the-barcelona-patients-association-uefh","title":{"rendered":"Las donaciones se entregan a las comunidades que sufren en Maracaibo, gracias a la asociaci\u00f3n de pacientes de Barcelona UEFH"},"content":{"rendered":"<p class=\"\" style=\"white-space:pre-wrap;\">A medida que el pa\u00eds de Venezuela se sale de control y la gente se queda sin alimentos y medicamentos, las comunidades m\u00e1s importantes afectadas por la enfermedad de Huntington en Maracaibo se mueren de hambre. Seg\u00fan nuestro amigo y colaborador el Dr. Ernesto Sol\u00eds, vecino de Maracaibo y defensor incansable de las familias afectadas por la EH all\u00ed, muchas veces la gente se queda sin comer nada. Normalmente, podr\u00edan recibir una comida al d\u00eda. Las condiciones en estos &#039;clusters&#039;, famosos por sus contribuciones durante muchos a\u00f1os a la ciencia, son vergonzosas.<\/p>\n<p class=\"\" style=\"white-space:pre-wrap;\">Durante los \u00faltimos dos a\u00f1os, no pudimos brindar ninguna asistencia, ya que el env\u00edo de bienes y dinero a Venezuela a trav\u00e9s de donaciones corporativas internacionales ha sido un problema.<\/p>\n<p class=\"\" style=\"white-space:pre-wrap;\">Intentamos enviar cosas por carretera desde Colombia, pero el gobierno de Venezuela impuso restricciones a los env\u00edos y cerraron la frontera para evitar que la gente saliera del pa\u00eds.<\/p>\n<p class=\"\" style=\"white-space:pre-wrap;\">Sin embargo, se nos ocurri\u00f3 que tal vez a trav\u00e9s de Espa\u00f1a podr\u00edamos obtener ayuda. Gracias a la amabilidad y generosidad de la asociaci\u00f3n de pacientes de Barcelona UEFH (Uni\u00f3n de Enfermos y Familiares de Huntington; ver enlace a su p\u00e1gina de Facebook) <a href=\"https:\/\/es-es.facebook.com\/pages\/Asociaci%C3%B3n-uefh\/725550940802728\" target=\"_blank\" rel=\"noopener noreferrer\">AQU\u00cd<\/a>), liderados por dos mujeres notables, Judit Serra y su madre Montserrat, recaudaron dinero y lo transfirieron a Maracaibo con la ayuda del Dr. Solis.<\/p>\n<p class=\"\" style=\"white-space:pre-wrap;\">A continuaci\u00f3n se muestran algunas de las fotograf\u00edas que nos envi\u00f3 la Dra. Solis a medida que las donaciones se dirig\u00edan a San Luis y Barranquitas.<\/p>\n<p class=\"\" style=\"white-space:pre-wrap;\">GRACIAS a la UEFH, a Ernesto ya Zulay Finol Romero, soci\u00f3loga al frente de la asociaci\u00f3n venezolana del distrito Zulia.<\/p>\n<p class=\"\" style=\"white-space:pre-wrap;\">Gracias por su ayuda, su perseverancia y su esp\u00edritu solidario con los m\u00e1s necesitados.<\/p>\n<p class=\"\" style=\"white-space:pre-wrap;\"><em>Debemos seguir tratando de ayudar contra viento y marea. Necesitan nuestra ayuda, m\u00e1s que cualquier otro lugar afectado por la EH en el mundo.<\/em><\/p>\n<p class=\"\" style=\"white-space:pre-wrap;\"><em>Otras asociaciones de pacientes pueden hacer lo mismo, solo cont\u00e1ctenos o UEFH para canalizar sus donaciones directamente a Maracaibo.<\/em><\/p>\n<p class=\"\" style=\"white-space:pre-wrap;\">Juntos, debemos evitar que estas personas mueran en la miseria y el olvido. Les debemos y ellos nos necesitan.<\/p>\n<ul data-rte-list=\"default\">\n<li>\n<p class=\"\" style=\"white-space:pre-wrap;\">nacho<\/p>\n<\/li>\n<\/ul>\n<div\n        class=\"image-block-outer-wrapper          layout-caption-below          design-layout-inline          combination-animation-none          individual-animation-none          individual-text-animation-none\"\n        data-test=\"image-block-inline-outer-wrapper\"\n    ><\/p>\n<figure\n            class=\"sqs-block-image-figure              intrinsic\"\n            style=\"max-width:1024.0px;\"\n        ><\/p>\n<div\n              \n                style=\"padding-bottom:90.29957580566406%;\"\n              \n              class=\"image-block-wrapper                                                  has-aspect-ratio\"\n              data-animation-role=\"image\"\n              \n  \n\n          ><br \/>\n            <noscript><img decoding=\"async\" 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src=\"https:\/\/images.squarespace-cdn.com\/content\/v1\/5872cc1b6a49630b7b2df1bc\/1488862526217-23J28TG7T458KJP6RF09\/ke17ZwdGBToddI8pDm48kL3VKmwKI3leYB51VJjLFB8UqsxRUqqbr1mOJYKfIPR7LoDQ9mXPOjoJoqy81S2I8N_N4V1vUb5AoIIIbLZhVYxCRW4BPu10St3TBAUQYVKcgK5SGg9Ovb1yloBBOHcruw_mYLfAhRzzgArFCB07Dw0L8n4JypuoE5Tg6Wg5Oyvs\/2016-10-26-PHOTO-00000122-1024x768.jpg\" alt=\"2016-10-26-FOTO-00000122-1024x768.jpg\" \/><\/noscript><img class=\"thumb-image\" data-src=\"https:\/\/images.squarespace-cdn.com\/content\/v1\/5872cc1b6a49630b7b2df1bc\/1488862526217-23J28TG7T458KJP6RF09\/ke17ZwdGBToddI8pDm48kL3VKmwKI3leYB51VJjLFB8UqsxRUqqbr1mOJYKfIPR7LoDQ9mXPOjoJoqy81S2I8N_N4V1vUb5AoIIIbLZhVYxCRW4BPu10St3TBAUQYVKcgK5SGg9Ovb1yloBBOHcruw_mYLfAhRzzgArFCB07Dw0L8n4JypuoE5Tg6Wg5Oyvs\/2016-10-26-PHOTO-00000122-1024x768.jpg\" 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data-src=\"https:\/\/images.squarespace-cdn.com\/content\/v1\/5872cc1b6a49630b7b2df1bc\/1488862525890-WXS71BO75CC8CYWMME9G\/ke17ZwdGBToddI8pDm48kL3VKmwKI3leYB51VJjLFB8UqsxRUqqbr1mOJYKfIPR7LoDQ9mXPOjoJoqy81S2I8N_N4V1vUb5AoIIIbLZhVYxCRW4BPu10St3TBAUQYVKcgK5SGg9Ovb1yloBBOHcruw_mYLfAhRzzgArFCB07Dw0L8n4JypuoE5Tg6Wg5Oyvs\/2016-10-26-PHOTO-00000121-1024x768.jpg\" data-image=\"https:\/\/images.squarespace-cdn.com\/content\/v1\/5872cc1b6a49630b7b2df1bc\/1488862525890-WXS71BO75CC8CYWMME9G\/ke17ZwdGBToddI8pDm48kL3VKmwKI3leYB51VJjLFB8UqsxRUqqbr1mOJYKfIPR7LoDQ9mXPOjoJoqy81S2I8N_N4V1vUb5AoIIIbLZhVYxCRW4BPu10St3TBAUQYVKcgK5SGg9Ovb1yloBBOHcruw_mYLfAhRzzgArFCB07Dw0L8n4JypuoE5Tg6Wg5Oyvs\/2016-10-26-PHOTO-00000121-1024x768.jpg\" data-image-dimensions=\"1024x768\" data-image-focal-point=\"0.5,0.5\" alt=\"2016-10-26-FOTO-00000121-1024x768.jpg\" data-load=\"false\" data-image-id=\"58be3421176dc49b27ae2396\" data-type=\"image\" \/>\n          <\/div>\n<\/figure><\/div>","protected":false},"excerpt":{"rendered":"<p>As the country of Venezuela spins out of control and people run out of food and medication, the most significant communities affected by Huntington&#8217;s disease in Maracaibo are starving. According to our friend and collaborator Dr. Ernesto Solis, a resident of Maracaibo and a tireless advocate of the families affected by HD there, people often [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"categories":[80,7,63,9,43,45],"tags":[],"class_list":["post-215","post","type-post","status-publish","format-standard","hentry","category-basic-assistance","category-colombia-news","category-community-development","category-general-news","category-them","category-venezuela-countries"],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/factor-h.org\/es\/wp-json\/wp\/v2\/posts\/215","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/factor-h.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/factor-h.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/factor-h.org\/es\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/factor-h.org\/es\/wp-json\/wp\/v2\/comments?post=215"}],"version-history":[{"count":0,"href":"https:\/\/factor-h.org\/es\/wp-json\/wp\/v2\/posts\/215\/revisions"}],"wp:attachment":[{"href":"https:\/\/factor-h.org\/es\/wp-json\/wp\/v2\/media?parent=215"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/factor-h.org\/es\/wp-json\/wp\/v2\/categories?post=215"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/factor-h.org\/es\/wp-json\/wp\/v2\/tags?post=215"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}