{"id":6608,"date":"2016-05-17T10:39:00","date_gmt":"2016-05-17T10:39:00","guid":{"rendered":"https:\/\/factor-h.org\/?p=6608"},"modified":"2021-09-17T10:50:35","modified_gmt":"2021-09-17T10:50:35","slug":"huntingtons-disease-the-new-gene-therapy-that-sufferers-cannot-afford","status":"publish","type":"post","link":"https:\/\/factor-h.org\/es\/huntingtons-disease-the-new-gene-therapy-that-sufferers-cannot-afford","title":{"rendered":"La enfermedad de Huntington: la nueva terapia g\u00e9nica que las v\u00edctimas no pueden permitirse el lujo de pagar"},"content":{"rendered":"<p>Mientras la peque\u00f1a lancha motora se detiene, tres viajeros, azotados por el viento despu\u00e9s del viaje de tres horas a lo largo del r\u00edo Atrato, llegan a las orillas fangosas de Bellavista, un pueblo de otro modo inaccesible en el coraz\u00f3n del noroeste densamente boscoso de\u00a0<a href=\"https:\/\/www.theguardian.com\/world\/colombia\">Colombia<\/a>. Balancean sus bolsas de arpillera, llenas de s\u00e1banas, frijoles secos y peluches, sobre sus hombros y trepan por un camino polvoriento. Escondido dentro de la bolsa de uno de los viajeros, la neuropsic\u00f3loga Sonia Moreno, est\u00e1 la raz\u00f3n por la que est\u00e1n aqu\u00ed: un fajo de gr\u00e1ficos de \u00e1rboles geneal\u00f3gicos sin terminar, dibujados a mano.<\/p>\n\n\n\n<p>Las personas cuyos nombres est\u00e1n encerrados en un c\u00edrculo en los gr\u00e1ficos tienen\u00a0<a href=\"http:\/\/www.nhs.uk\/conditions\/Huntingtons-disease\/Pages\/Introduction.aspx\">enfermedad de Huntington<\/a>, un trastorno cerebral gen\u00e9tico incurable que suele comenzar entre los 35 y los 45 a\u00f1os. Comienza con cambios de personalidad que pueden volverlos agresivos, violentos, desinhibidos, ansiosos y deprimidos. La enfermedad\u2026<\/p>\n\n\n\n<p><a href=\"https:\/\/www.theguardian.com\/science\/2016\/may\/15\/huntingtons-disease-drugs-cure-research-poor-families-colombia-corporate-responsibility\" target=\"_blank\" rel=\"noreferrer noopener\">SEGUIR LEYENDO<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>As the small motorboat chugs to a halt, three travellers, wind-beaten from the three-hour journey along the Atrato river, step on to the muddy banks of Bellavista, an otherwise inaccessible town in the heart of the heavily forested north-west of\u00a0Colombia. They swing their hessian bags \u2013 stuffed with bedsheets, dried beans and cuddly toys \u2013 [&hellip;]<\/p>\n","protected":false},"author":4,"featured_media":6609,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"categories":[98,9,41],"tags":[126,127],"class_list":["post-6608","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-in-the-press","category-general-news","category-us","tag-dara-mohammadi","tag-the-guardian"],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/factor-h.org\/es\/wp-json\/wp\/v2\/posts\/6608","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/factor-h.org\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/factor-h.org\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/factor-h.org\/es\/wp-json\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"https:\/\/factor-h.org\/es\/wp-json\/wp\/v2\/comments?post=6608"}],"version-history":[{"count":0,"href":"https:\/\/factor-h.org\/es\/wp-json\/wp\/v2\/posts\/6608\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/factor-h.org\/es\/wp-json\/wp\/v2\/media\/6609"}],"wp:attachment":[{"href":"https:\/\/factor-h.org\/es\/wp-json\/wp\/v2\/media?parent=6608"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/factor-h.org\/es\/wp-json\/wp\/v2\/categories?post=6608"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/factor-h.org\/es\/wp-json\/wp\/v2\/tags?post=6608"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}