Dancing at the Vatican Premiere Photographs

The premiere for the documentary film Dancing at the Vatican took place in West Hollywood, Los Angeles, on July 27th 2019, and it was a great success. A couple of hundreds friends and supporters of HD families gathered for the opening of the documentary of our trip to the Vatican in 2017 to meet with Pope Francis. Charles Sabine, HD advocate and co-organizer of the event, and myself spoke to the audience after the documentary during the Q&A session. Actors Kate Miner, also from an HD family, and Juan Pablo Yepez of Maracaibo, also spoke about their experience with HD and about the situation in Venezuela. Media representatives from Latin American networks and social influencers accompanied us and gave the event relevance in the hispanic community in California. Next will be the showing of the documentary in Washington DC. Stay tuned for updates about future screenings!

Join us in Los Angeles on July 27 2019 for the opening of the film Dancing at the Vatican

On July 27th, doors opening at 5pm, at the Pacific Design Center in West Hollywood, Los Angeles.

Factor-H and HDdennomore are proud to show the documentary film of our visit to the Vatican in May 2017, where we took 5 families with Huntington’s disease from Latin America to meet Pope Francis.

Learn about their stories, the conditions of their HD communities in Latin America, and their extraordinary experience during the trip and meeting Pope Francis and HD families from all over the world in Rome.

A truly heart warming documentary and a call to action. Together we can make a difference!

tickets must be reserved by clicking HERE.

The film will be followed by a Q&A with Ignacio Munoz-Sanjuan and Charles Sabine, co-organizers of the event, and a reception.

Find out about other screenings and the stories of the families at this link: www.dancingatthevatican.com

This is a fundraising event

we are kindly asking for donations at the time of reserving your tickets

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First Latin American HD Conference in Barranquilla, Colombia

Factor-H is organizing a conference bringing together an international panel of clinicians, scientists, and members of Latin American HD associations for a 2-day conference and associated events set for July 6-8 in Barranquilla, Colombia. The event is sponsored by the Colombian Neurology Association and Hilton hotels, where the event will take place. The meeting will host representatives from many Latin American associations, medical centers, and scientists and clinicians coming from North America, Latin America and Europe. We expect many people to attend and the event is free for all.

We will also be showing, for the first time, the full documentary of our visit to Rome in May 2018, where we took 5 families from Colombia, Venezuela and Argentina to be blessed by Pope Francis.

This event was co-organized by Factor-H and HDdennomore.

Prior to the medical and social conference we will be co-hosting the first ever HDYO meeting in Latin America. Matthew (HDYO Founder and President) and Cat (HDYO CEO) will be hosting 26 young people from 7 Latin American countries, who will gather in Barranquilla from the 4-6 of July to speak about the issues faced by young people working with these HD communities or by affected family members.

Finally, on July 9th, we will be conducting a medical mission in Juan de Acosta, near Barranquilla, the second largest cluster of HD in the world. Together with the departmental Secretary of Health and local universities, we expect to meet and care for many affected HD families in the region. Stay tuned for pictures and stories!

For hotel reservations please click HERE