{"id":10738,"date":"2024-09-11T08:03:26","date_gmt":"2024-09-11T08:03:26","guid":{"rendered":"https:\/\/factor-h.org\/?p=10738"},"modified":"2024-09-11T08:05:00","modified_gmt":"2024-09-11T08:05:00","slug":"factor-h-nominated-for-the-2024-amgen-prize","status":"publish","type":"post","link":"https:\/\/factor-h.org\/pt\/factor-h-nominated-for-the-2024-amgen-prize","title":{"rendered":"A Factor-H foi indicada para o Pr\u00eamio Amgen de 2024"},"content":{"rendered":"
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Temos a honra de ser uma das cinco organiza\u00e7\u00f5es sem fins lucrativos finalistas indicadas para esse prestigioso pr\u00eamio, selecionadas entre 90 organiza\u00e7\u00f5es candidatas. O pr\u00eamio de US$150.000 ser\u00e1 concedido a uma das cinco finalistas. <\/p>\n

O Pr\u00eamio Amgen 2024 recompensa a inova\u00e7\u00e3o no tratamento de pacientes com doen\u00e7as raras.<\/span> <\/span><\/p>\n

A Factor-H enviou uma solicita\u00e7\u00e3o para financiar nosso programa de apoio a cuidadores para as comunidades venezuelanas. O programa \u00e9 liderado por Alex Fisher<\/b> que se tornou um membro integral da Factor-H, trabalhando em estreita colabora\u00e7\u00e3o com a equipe da Habitat LUZ na Venezuela. <\/p>\n

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O Pr\u00eamio Amgen busca solu\u00e7\u00f5es inovadoras de organiza\u00e7\u00f5es sem fins lucrativos e ONGs de todo o mundo que melhorem a jornada dos pacientes com doen\u00e7as raras, desde o diagn\u00f3stico at\u00e9 o tratamento e o cuidado hol\u00edstico. O vencedor ser\u00e1 anunciado no East Stage na Concordia Summit, em Nova York, em 25 de setembro de 2024. A agenda do 14\u00ba Concordia Summit anual pode ser encontrada AQUI<\/a>. O tema da C\u00fapula \u00e9 Navegando em uma nova era.<\/em><\/p>\n

B<\/span>Abaixo voc\u00ea encontra o v\u00eddeo de apresenta\u00e7\u00e3o que Ignacio Mu\u00f1oz-Sanjuan apresentou para o Pr\u00eamio Amgen e o trailer de nosso novo document\u00e1rio sobre a vida dos cuidadores informais de HD em Barranquitas, produzido e dirigido por nosso colega <\/span>Gindel Delgado<\/b><\/span> de Caracas, Venezuela. <\/span><\/p>

O document\u00e1rio ser\u00e1 exibido no congresso da EHDN<\/span>r\u00eancia <\/i>esta semana e estrear\u00e1 em Los Angeles em 17 de outubro de 2024.<\/span><\/p>\n

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We are honored to be 1 of 5 finalist nonprofit organizations being nominated for this prestigious award, selected out of 90 applicant organizations. The award of US$150,000 will be given to one of the five finalists.  The Amgen Prize 2024 rewards innovative in rare disease patient care.  Factor-H submitted an application to fund our caregivers’ […]<\/p>\n","protected":false},"author":3,"featured_media":10745,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"categories":[241,47,64,53,98,71,9,45],"tags":[131,158,139],"class_list":["post-10738","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-awareness","category-caregivers-training","category-advocacy","category-health-disease-management","category-in-the-press","category-media-campaigns","category-general-news","category-venezuela-countries","tag-factor-h","tag-hd","tag-huntingtondisease"],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/factor-h.org\/pt\/wp-json\/wp\/v2\/posts\/10738","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/factor-h.org\/pt\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/factor-h.org\/pt\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/factor-h.org\/pt\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/factor-h.org\/pt\/wp-json\/wp\/v2\/comments?post=10738"}],"version-history":[{"count":16,"href":"https:\/\/factor-h.org\/pt\/wp-json\/wp\/v2\/posts\/10738\/revisions"}],"predecessor-version":[{"id":10758,"href":"https:\/\/factor-h.org\/pt\/wp-json\/wp\/v2\/posts\/10738\/revisions\/10758"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/factor-h.org\/pt\/wp-json\/wp\/v2\/media\/10745"}],"wp:attachment":[{"href":"https:\/\/factor-h.org\/pt\/wp-json\/wp\/v2\/media?parent=10738"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/factor-h.org\/pt\/wp-json\/wp\/v2\/categories?post=10738"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/factor-h.org\/pt\/wp-json\/wp\/v2\/tags?post=10738"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}