{"id":11042,"date":"2025-04-12T17:11:39","date_gmt":"2025-04-12T17:11:39","guid":{"rendered":"https:\/\/factor-h.org\/?p=11042"},"modified":"2025-04-12T17:11:40","modified_gmt":"2025-04-12T17:11:40","slug":"2025-gratitude-day-a-summary-of-the-events-in-venezuela","status":"publish","type":"post","link":"https:\/\/factor-h.org\/pt\/2025-gratitude-day-a-summary-of-the-events-in-venezuela","title":{"rendered":"2025 Dia da Gratid\u00e3o - um resumo dos eventos na Venezuela"},"content":{"rendered":"<p><strong>O Dia da Gratid\u00e3o ocorreu em 23 de mar\u00e7o de 2025<\/strong> e culminou uma semana de eventos na Venezuela para homenagear as contribui\u00e7\u00f5es das fam\u00edlias venezuelanas para o avan\u00e7o da ci\u00eancia e da medicina. <\/p>\n\n\n\n<p>A Factor-H, trabalhando em conjunto com a Habitat LUZ, volunt\u00e1rios da comunidade e profissionais de sa\u00fade, organizou uma s\u00e9rie de eventos, desde uma atividade m\u00e9dica pedi\u00e1trica em San Luis, Maracaibo, uma vig\u00edlia \u00e0 luz de velas para homenagear as pessoas que morreram de DH em San Luis e Barranquitas, e atividades educacionais para crian\u00e7as em risco de DH.<\/p>\n\n\n\n<p>O evento de transmiss\u00e3o ao vivo foi realizado no domingo, 23 de mar\u00e7o, e incluiu v\u00eddeos de algumas das atividades que ocorreram durante essa semana, al\u00e9m de entrevistas com indiv\u00edduos locais, com nossos principais parceiros na regi\u00e3o e com m\u00e9dicos que realizam o trabalho da Factor-H. Essa transmiss\u00e3o ao vivo tem o objetivo de retratar as condi\u00e7\u00f5es dessas comunidades, bem como destacar o trabalho que a Factor-H realiza para melhorar suas condi\u00e7\u00f5es de vida. O evento foi gerenciado por Jimmy Pollard e Ignacio Munoz-Sanjuan. <\/p>\n\n\n\n<p>Se voc\u00ea quiser saber mais sobre quem somos, o que fazemos e como \u00e9 a vida nessas comunidades, assista aos v\u00eddeos curtos incorporados.<\/p>\n\n\n\n<p>Voc\u00ea pode assistir \u00e0 grava\u00e7\u00e3o do evento em v\u00eddeo abaixo no YouTube<\/p>\n\n\n\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe title=\"V\u00eddeo do evento de transmiss\u00e3o ao vivo da Venezuela para o Dia da Gratid\u00e3o 2025\" width=\"800\" height=\"450\" src=\"https:\/\/www.youtube.com\/embed\/3z_dycyGA1Y?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><\/figure>\n\n\n\n<p>A Factor-H oferece apoio a atividades de sa\u00fade, incluindo cl\u00ednicas neurol\u00f3gicas para pacientes e para crian\u00e7as em risco de desenvolver a DH, juntamente com universidades locais e m\u00e9dicos volunt\u00e1rios. Em 19 de mar\u00e7o, realizamos um dia m\u00e9dico pedi\u00e1trico em San Luis, Maracaibo, onde mais de 40 crian\u00e7as foram atendidas por pediatras e odont\u00f3logos locais. Essas atividades ajudam os membros mais jovens dessas comunidades com suplementos nutricionais, vacinas e outros servi\u00e7os que n\u00e3o s\u00e3o de f\u00e1cil acesso. Tamb\u00e9m identificamos tr\u00eas crian\u00e7as entre 6 e 12 anos de idade com suspeita de sintomas iniciais da doen\u00e7a de Huntington. Nossos neurologistas pedi\u00e1tricos, liderados pela Dra. Gabriela Rios, acompanhar\u00e3o o tratamento dessas crian\u00e7as.<\/p>\n\n\n\n<p>Um evento muito especial durante a Semana da Gratid\u00e3o \u00e9 o <strong>Vig\u00edlia \u00e0 luz de velas,<\/strong> que, este ano, ocorreu nas duas comunidades mais afetadas pela DH, comunidades que foram fundamentais para a identifica\u00e7\u00e3o do gene da huntingtina e tamb\u00e9m para aumentar nossa compreens\u00e3o dos sintomas e da progress\u00e3o da doen\u00e7a. <\/p>\n\n\n\n<p>Os membros da fam\u00edlia se reuniram \u00e0 noite para homenagear aqueles que faleceram em decorr\u00eancia dessa terr\u00edvel doen\u00e7a. O fot\u00f3grafo Vladimir Marcano realizou uma exposi\u00e7\u00e3o fotogr\u00e1fica nas ruas de San Luis com imagens em tamanho grande de seu trabalho com a doen\u00e7a de Huntington, o que levou a uma conversa com a comunidade e os adolescentes sobre a hist\u00f3ria da doen\u00e7a nessa comunidade.<\/p>\n\n\n\n<p>Agradecemos a todos que participaram do evento de transmiss\u00e3o ao vivo ou da campanha de m\u00eddia social. Em especial, \u00e0queles que decidiram fazer uma doa\u00e7\u00e3o para ajudar nossos amigos na Venezuela.<\/p>\n\n\n\n<p>Y<strong>Voc\u00ea ainda pode fazer doa\u00e7\u00f5es por meio de nossa p\u00e1gina de doa\u00e7\u00f5es. Precisamos de seu apoio!<\/strong><\/p>\n\n\n\n<figure class=\"wp-block-gallery has-nested-images columns-2 is-cropped wp-block-gallery-1 is-layout-flex wp-block-gallery-is-layout-flex\">\n<figure class=\"wp-block-image size-large\"><img fetchpriority=\"high\" decoding=\"async\" width=\"683\" height=\"1024\" data-id=\"11051\" src=\"https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0405-copy-683x1024.jpeg\" alt=\"\" class=\"wp-image-11051\" srcset=\"https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0405-copy-683x1024.jpeg 683w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0405-copy-200x300.jpeg 200w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0405-copy-768x1152.jpeg 768w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0405-copy-8x12.jpeg 8w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0405-copy.jpeg 945w\" sizes=\"(max-width: 683px) 100vw, 683px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img decoding=\"async\" width=\"1024\" height=\"682\" data-id=\"11047\" src=\"https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0229-copy-1024x682.jpeg\" alt=\"\" class=\"wp-image-11047\" srcset=\"https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0229-copy-1024x682.jpeg 1024w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0229-copy-300x200.jpeg 300w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0229-copy-768x512.jpeg 768w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0229-copy-18x12.jpeg 18w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0229-copy.jpeg 1181w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img decoding=\"async\" width=\"1024\" height=\"682\" data-id=\"11048\" src=\"https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0590-copy-1024x682.jpeg\" alt=\"\" class=\"wp-image-11048\" srcset=\"https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0590-copy-1024x682.jpeg 1024w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0590-copy-300x200.jpeg 300w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0590-copy-768x512.jpeg 768w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0590-copy-18x12.jpeg 18w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0590-copy.jpeg 1181w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"682\" data-id=\"11053\" src=\"https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A9280-copy-1024x682.jpeg\" alt=\"\" class=\"wp-image-11053\" srcset=\"https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A9280-copy-1024x682.jpeg 1024w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A9280-copy-300x200.jpeg 300w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A9280-copy-768x512.jpeg 768w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A9280-copy-18x12.jpeg 18w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A9280-copy.jpeg 1181w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"945\" height=\"630\" data-id=\"11045\" src=\"https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0067.jpg\" alt=\"\" class=\"wp-image-11045\" srcset=\"https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0067.jpg 945w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0067-300x200.jpg 300w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0067-768x512.jpg 768w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0067-18x12.jpg 18w\" sizes=\"(max-width: 945px) 100vw, 945px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"682\" data-id=\"11049\" src=\"https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0169-copy-1024x682.jpeg\" alt=\"\" class=\"wp-image-11049\" srcset=\"https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0169-copy-1024x682.jpeg 1024w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0169-copy-300x200.jpeg 300w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0169-copy-768x512.jpeg 768w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0169-copy-18x12.jpeg 18w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0169-copy.jpeg 1181w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"708\" data-id=\"11054\" src=\"https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A9200-copy-1024x708.jpeg\" alt=\"\" class=\"wp-image-11054\" srcset=\"https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A9200-copy-1024x708.jpeg 1024w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A9200-copy-300x207.jpeg 300w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A9200-copy-768x531.jpeg 768w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A9200-copy-1536x1062.jpeg 1536w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A9200-copy-2048x1416.jpeg 2048w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A9200-copy-18x12.jpeg 18w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"682\" data-id=\"11050\" src=\"https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0397-copy-1024x682.jpeg\" alt=\"\" class=\"wp-image-11050\" srcset=\"https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0397-copy-1024x682.jpeg 1024w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0397-copy-300x200.jpeg 300w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0397-copy-768x512.jpeg 768w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0397-copy-18x12.jpeg 18w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0397-copy.jpeg 1181w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"683\" data-id=\"11055\" src=\"https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0030-copy-1024x683.jpeg\" alt=\"\" class=\"wp-image-11055\" srcset=\"https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0030-copy-1024x683.jpeg 1024w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0030-copy-300x200.jpeg 300w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0030-copy-768x512.jpeg 768w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0030-copy-1536x1024.jpeg 1536w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0030-copy-2048x1365.jpeg 2048w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0030-copy-18x12.jpeg 18w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"682\" data-id=\"11052\" src=\"https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0633-copy-1024x682.jpeg\" alt=\"\" class=\"wp-image-11052\" srcset=\"https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0633-copy-1024x682.jpeg 1024w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0633-copy-300x200.jpeg 300w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0633-copy-768x512.jpeg 768w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0633-copy-18x12.jpeg 18w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0633-copy.jpeg 1181w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"682\" data-id=\"11046\" src=\"https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0530-copy-1-1024x682.jpeg\" alt=\"\" class=\"wp-image-11046\" srcset=\"https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0530-copy-1-1024x682.jpeg 1024w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0530-copy-1-300x200.jpeg 300w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0530-copy-1-768x512.jpeg 768w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0530-copy-1-18x12.jpeg 18w, https:\/\/factor-h.org\/wp-content\/uploads\/2025\/04\/QR7A0530-copy-1.jpeg 1181w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n<\/figure>\n\n\n\n<p>Antes do evento, tr\u00eas l\u00edderes femininas de destaque na comunidade da doen\u00e7a de Huntington compartilharam seus pensamentos sobre a \u00e9poca em que visitaram as comunidades venezuelanas de DH. Essas visitas foram fundamentais em suas carreiras e garantiram seu compromisso de perseverar em nossa busca para encontrar tratamentos para essa doen\u00e7a devastadora. <\/p>\n\n\n\n<p><strong>Obrigado Gill Bates, Leslie Thompson e Alice Wexler!<\/strong><\/p>\n\n\n\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe title=\"Gill Bates fala sobre o Dia da Gratid\u00e3o 2025\" width=\"800\" height=\"450\" src=\"https:\/\/www.youtube.com\/embed\/0XL86MDI93o?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><\/figure>\n\n\n\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe title=\"Leslie Thomson discursa no Dia da Gratid\u00e3o 2025\" width=\"800\" height=\"450\" src=\"https:\/\/www.youtube.com\/embed\/TxvjkknjSsU?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><\/figure>\n\n\n\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<iframe title=\"Alice Wexler discursa no Dia da Gratid\u00e3o 2025\" width=\"800\" height=\"450\" src=\"https:\/\/www.youtube.com\/embed\/wd2nDwtY1q4?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe>\n<\/div><\/figure>","protected":false},"excerpt":{"rendered":"<p>Gratitude Day took place on March 23rd, 2025 and culminated a week of events in Venezuela to honor the contributions of the Venezuelan families to the advancement of science and medicine. Factor-H, working alongside Habitat LUZ, volunteers from the community and health professionals, hosted a series of events ranging from a pediatric medical activity in [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":11043,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"categories":[64,231,53,71,9,45],"tags":[131,263,139],"class_list":["post-11042","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-advocacy","category-fundraising-events","category-health-disease-management","category-media-campaigns","category-general-news","category-venezuela-countries","tag-factor-h","tag-hdgratitudeday","tag-huntingtondisease"],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/factor-h.org\/pt\/wp-json\/wp\/v2\/posts\/11042","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/factor-h.org\/pt\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/factor-h.org\/pt\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/factor-h.org\/pt\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/factor-h.org\/pt\/wp-json\/wp\/v2\/comments?post=11042"}],"version-history":[{"count":5,"href":"https:\/\/factor-h.org\/pt\/wp-json\/wp\/v2\/posts\/11042\/revisions"}],"predecessor-version":[{"id":11059,"href":"https:\/\/factor-h.org\/pt\/wp-json\/wp\/v2\/posts\/11042\/revisions\/11059"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/factor-h.org\/pt\/wp-json\/wp\/v2\/media\/11043"}],"wp:attachment":[{"href":"https:\/\/factor-h.org\/pt\/wp-json\/wp\/v2\/media?parent=11042"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/factor-h.org\/pt\/wp-json\/wp\/v2\/categories?post=11042"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/factor-h.org\/pt\/wp-json\/wp\/v2\/tags?post=11042"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}