{"id":6608,"date":"2016-05-17T10:39:00","date_gmt":"2016-05-17T10:39:00","guid":{"rendered":"https:\/\/factor-h.org\/?p=6608"},"modified":"2021-09-17T10:50:35","modified_gmt":"2021-09-17T10:50:35","slug":"huntingtons-disease-the-new-gene-therapy-that-sufferers-cannot-afford","status":"publish","type":"post","link":"https:\/\/factor-h.org\/pt\/huntingtons-disease-the-new-gene-therapy-that-sufferers-cannot-afford","title":{"rendered":"Doen\u00e7a de Huntington: a nova terapia gen\u00e9tica que os doentes n\u00e3o conseguem pagar"},"content":{"rendered":"<p>Enquanto o pequeno barco a motor para, tr\u00eas viajantes, castigados pelo vento da jornada de tr\u00eas horas ao longo do rio Atrato, pisam nas margens lamacentas de Bellavista, uma cidade inacess\u00edvel no cora\u00e7\u00e3o do noroeste densamente arborizado de\u00a0<a href=\"https:\/\/www.theguardian.com\/world\/colombia\">Col\u00f4mbia<\/a>. Eles balan\u00e7am suas sacolas de juta \u2013 recheadas com len\u00e7\u00f3is, feij\u00f5es secos e peluches \u2013 nos ombros e escalam um caminho empoeirado. Escondido dentro da bolsa de um dos viajantes, a neuropsic\u00f3loga Sonia Moreno, est\u00e1 o motivo de eles estarem aqui: um ma\u00e7o de gr\u00e1ficos inacabados e desenhados \u00e0 m\u00e3o de \u00e1rvores geneal\u00f3gicas.<\/p>\n\n\n\n<p>As pessoas cujos nomes est\u00e3o circulados nos gr\u00e1ficos t\u00eam\u00a0<a href=\"http:\/\/www.nhs.uk\/conditions\/Huntingtons-disease\/Pages\/Introduction.aspx\">Doen\u00e7a de Huntington<\/a>, um dist\u00farbio cerebral gen\u00e9tico incur\u00e1vel que geralmente come\u00e7a entre as idades de 35 e 45 anos. Come\u00e7a com mudan\u00e7as de personalidade que podem torn\u00e1-los agressivos, violentos, desinibidos, ansiosos e deprimidos. A doen\u00e7a\u2026<\/p>\n\n\n\n<p><a href=\"https:\/\/www.theguardian.com\/science\/2016\/may\/15\/huntingtons-disease-drugs-cure-research-poor-families-colombia-corporate-responsibility\" target=\"_blank\" rel=\"noreferrer noopener\">CONTINUE LENDO<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>As the small motorboat chugs to a halt, three travellers, wind-beaten from the three-hour journey along the Atrato river, step on to the muddy banks of Bellavista, an otherwise inaccessible town in the heart of the heavily forested north-west of\u00a0Colombia. They swing their hessian bags \u2013 stuffed with bedsheets, dried beans and cuddly toys \u2013 [&hellip;]<\/p>\n","protected":false},"author":4,"featured_media":6609,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"categories":[98,9,41],"tags":[126,127],"class_list":["post-6608","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-in-the-press","category-general-news","category-us","tag-dara-mohammadi","tag-the-guardian"],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/factor-h.org\/pt\/wp-json\/wp\/v2\/posts\/6608","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/factor-h.org\/pt\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/factor-h.org\/pt\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/factor-h.org\/pt\/wp-json\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"https:\/\/factor-h.org\/pt\/wp-json\/wp\/v2\/comments?post=6608"}],"version-history":[{"count":0,"href":"https:\/\/factor-h.org\/pt\/wp-json\/wp\/v2\/posts\/6608\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/factor-h.org\/pt\/wp-json\/wp\/v2\/media\/6609"}],"wp:attachment":[{"href":"https:\/\/factor-h.org\/pt\/wp-json\/wp\/v2\/media?parent=6608"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/factor-h.org\/pt\/wp-json\/wp\/v2\/categories?post=6608"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/factor-h.org\/pt\/wp-json\/wp\/v2\/tags?post=6608"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}