Programa Nuevos Horizontes​ (New Horizons). Re-structure of the Abrazos Program

Programa Nuevos Horizontes​ (New Horizons). Re-structure of the Abrazos Program

Objective of the re-structuring To implement a restructuring of the existing Abrazos Program to provide equity, physical and mental health to all children and adolescents of families affected by Huntington’s Disease (HD) in Colombia and Venezuela. extends prior Abrazos Program to cover all children living in HD families, regardless of…
Meet Brayan - the video

Meet Brayan - the video

<br /> A few months ago I wrote a story about meeting Brayan, a young kid at risk for HD from Barranquitas, Venezuela (see blog post “Reflections on instilling a sense of hope”). Together with colleagues Matt Rota (https://www.mattrotasart.com) and Nicanor Cardeñosa, we put together a narrated illustrated story of…
Reflections on instilling a sense of hope

Reflections on instilling a sense of hope

What is the difference between having no hope and having hope? Meet Brayan, a 13-year old boy I met when visiting the town of Barranquitas, in Venezuela, in December 2018, the last time I was able to visit. This town is a forsaken, isolated village where in every corner one…
Project Abrazos completes 5 years bringing hope to kids at risk for HD

Project Abrazos completes 5 years bringing hope to kids at risk for HD

The project ‘Abrazos’ (Hugs) started in 2015 and it aims to provide donations for children in Colombia and Venezuela living in families affected by HD and in extreme poverty conditions. Their family situation is dire and many of the kids have been abandoned by one of their parents. Often times,…