Autor: Nicanor

Factor-H will join Giving Tuesday on December 3 as one of our major donation days

GivingTuesday is a global generosity movement unleashing the power of radical generosity. This December 3, Factor-H will take part in Giving Tuesday (#GivingTuesday), a global day dedicated to promoting solidarity and supporting organizations working toward a fairer, more humane world. For us, it is one of the most important fundraising days of the year, and […]

Happy Thanksgiving day!!! From Factor-H

Today, we want to take a moment to say thank you to our entire community — donors, volunteers, partners, families, and friends who support our mission every day.Your commitment, compassion, and generosity make our work possible.We are deeply grateful for each of you. Wherever you are in the world today, we hope you find a […]

Today, November 13th, is World Huntington’s Disease Day

In Latin America, thousands of families live with the impact of Huntington’s disease — an inherited, devastating condition that affects both mind and body. In countries like Venezuela and Colombia, where prevalence rates are among the highest in the world, families face not only the disease but also poverty, isolation, and lack of access to […]

Hope in Numbers: More than 2,000 people from the Huntington’s community in Venezuela benefited from Factor-H programs during the third quarter of 2025

During the third quarter of 2025, Factor-H, in partnership with Hábitat Luz, expanded its impact in the communities of San Luis and Barranquitas, reaching a total of 2,045 people, including individuals with Huntington’s disease (HD), their families, and children from the Abrazos Program.

Ignacio Muñoz-Sanjuan: “We may see a Huntington’s therapy approved in 2026. It is a day for hope: while the therapy will at first be limited, access will increase in the years ahead”

24/09/2025 Ignacio Muñoz-Sanjuan, neuroscientist and founder of the non-profit Factor-H, has expressed optimism that an experimental gene therapy for Huntington’s disease, developed by uniQure and called AMT-130, could receive regulatory approval in the first half of 2026, in what is a very significant milestone for patients and families affected by the disorder. “It is a […]

Medical Outreach in San Luis: Over 100 Beneficiaries

On July 19, Factor H hosted a Medical Outreach event in San Luis, Venezuela, for people living with Huntington’s disease and those at risk of developing it. More than 100 individuals received comprehensive care—something that would not have been possible without the incredible commitment of 40 volunteers and partners. The next event, scheduled for October […]

Handmade Art: A Transformative Experience for HD Communities of the Colombian Caribbean Coast

During May and June 2025, the HD communities in Juan de Acosta, Valledupar, Santa Marta, and Algarrobo took part in a series of art workshops that blended tradition, creativity, and personal development. Organized by Factor-H, these activities aimed to strengthen manual skills, stimulate creativity, and provide participants with a meaningful experience of self-expression. Four Artistic […]

Um dia de saúde abrangente para crianças e adolescentes em Santa Marta, Colômbia

Santa Marta, 10 de maio de 2025 Como parte do Programa Abrazos, a Factor-H realizou um dia especial dedicado às crianças e adolescentes direta ou indiretamente afetados pela doença de Huntington, sob o tema "Cuidar de você é minha prioridade". A atividade, realizada em 10 de maio na cidade de Santa Marta, teve como foco a promoção da saúde e a doença [...]

O prefeito de Juan de Acosta, na Colômbia, encontra-se com o presidente da Factor-H para discutir a disponibilidade de um espaço para pacientes em HD e sua comunidade

Em 10 de abril de 2023, o presidente da Factor-H, Ignacio Muñoz-Sanjuan, e membros da equipe de gestão na Colômbia se reuniram com Carlos Manuel Higgins Villanueva, prefeito de Juan de Acosta, para discutir a gestão de um espaço municipal pela Factor -H, que pretende servir de centro operacional para os serviços e atividades prestados pela Factor-H […]

Dia da Gratidão: Comemoração dos 30 anos da descoberta do gene da huntingtina

Há 30 anos, no dia 23 de Março, foi publicado um artigo marcante da Cell, descrevendo que a mutação no gene responsável pela doença de Huntington tinha sido identificada pela primeira vez. Esta descoberta foi possível graças à colaboração entre cientistas de diferentes países, -James F. Gusella e colaboradores (Grupo de pesquisa colaborativa EUA-Venezuela)- e o […]