Factor-H will join Giving Tuesday on December 3 as one of our major donation days

Alex Fisher and a patient share an embrace.
Alex Fisher leeding La Luz Caregivers programme that won the Amgen Price 2024

GivingTuesday is a global generosity movement unleashing the power of radical generosity.

For us, it is one of the most important fundraising days of the year, and one of only two occasions when the President and Founder of Factor-H, neuroscientist Ignacio Muñoz-Sanjuan, directly asks the community to contribute as they are able. (The other appeal will take place next year on Gratitude Day — March 23, with funds dedicated to the Venezuelan community whose transgenerational effort enabled the discovery of the HD gene and marked a major milestone in mapping the human genome.)

For Factor-H, Giving Tuesday is a unique opportunity to mobilize the resources we need to continue supporting communities affected by Huntington’s disease across Latin America. For a concrete example of how your contributions are used, you can find detailed information from the Q3 Venezuela report here.

“I invite everyone who follows and supports our work to join this global initiative. Your contribution — large or small — helps transform the lives of those who need it most and strengthens our health, education, and community support programs,” said Muñoz-Sanjuan, whose personal and scientific trajectory changed radically the day he first met the communities he has devoted more than a decade of his life to.”

“There was no turning back,” he recalls. “Seeing the needs and the reality of those who had given so much makes it impossible not to see science from a new perspective. I encourage every scientist to connect with the human side of their work — beyond the laboratory — to visit an talk, at least once every two years, with the people whose lives and suffering they seek to alleviate.”

“Today, there is still no definitive solution, but progress has been made and doors to optimism have opened. This is what scientific work is: you study, you work, sometimes you end up in dead ends from which you learn a great deal, and every so often, after years and years of daily effort, something encouraging emerges. Then you realize that 14 years have passed, and suddenly it all makes sense.”

“Science is inherently collaborative; every researcher’s work contributes to an expanding community. Your failure may become someone else’s success — and therefore your own. But the embrace of someone living in extreme hardship, the gratitude of a person you’ve listened to, someone you’ve helped access medication or neurological care — their ‘thank you’ from a place where human dignity is tested to its limits — that is what helps the mind truly understand the meaning of our work.

And in the end, you are the one thanking them because they give meaning to your life.”

“Gratitude between people binds us through the most fundamental human connection — a bond that, when allowed, always flows both ways,” he concludes.

Pledge

“Your donation has a clear and direct purpose: it reaches one person, then another, and then another — each with a name, with parents or children who love and care for them; sometimes they are minors themselves. In Venezuela, some have friends… and some have only Factor-H.

Sometimes all they have is your generosity to help them face some of the darkest corners of the human experience.

We look forward to joining you this Giving Tuesday 2025. All of us will be giving. Together, we create real impact.”

Ignacio Muñoz-San Juan

Factor-H President

 

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