Autor: Nicanor

Factor-H will join Giving Tuesday on December 3 as one of our major donation days

GivingTuesday is a global generosity movement unleashing the power of radical generosity. This December 3, Factor-H will take part in Giving Tuesday (#GivingTuesday), a global day dedicated to promoting solidarity and supporting organizations working toward a fairer, more humane world. For us, it is one of the most important fundraising days of the year, and […]

Happy Thanksgiving day!!! From Factor-H

Today, we want to take a moment to say thank you to our entire community — donors, volunteers, partners, families, and friends who support our mission every day.Your commitment, compassion, and generosity make our work possible.We are deeply grateful for each of you. Wherever you are in the world today, we hope you find a […]

Today, November 13th, is World Huntington’s Disease Day

In Latin America, thousands of families live with the impact of Huntington’s disease — an inherited, devastating condition that affects both mind and body. In countries like Venezuela and Colombia, where prevalence rates are among the highest in the world, families face not only the disease but also poverty, isolation, and lack of access to […]

Esperanza en cifras: Más de 2.000 personas de la comunidad de Huntington en Venezuela se beneficiaron de los programas de Factor-H durante el tercer trimestre de 2025.

During the third quarter of 2025, Factor-H, in partnership with Hábitat Luz, expanded its impact in the communities of San Luis and Barranquitas, reaching a total of 2,045 people, including individuals with Huntington’s disease (HD), their families, and children from the Abrazos Program.

Ignacio Muñoz-Sanjuan: “Podríamos ver una terapia para la enfermedad de Huntington aprobada en 2026. Es un día para la esperanza: aunque al principio el tratamiento será limitado, el acceso aumentará en los próximos años.”

24/09/2025 Ignacio Muñoz-Sanjuan, neuroscientist and founder of the non-profit Factor-H, has expressed optimism that an experimental gene therapy for Huntington’s disease, developed by uniQure and called AMT-130, could receive regulatory approval in the first half of 2026, in what is a very significant milestone for patients and families affected by the disorder. “It is a […]

Medical Outreach in San Luis: Over 100 Beneficiaries

On July 19, Factor H hosted a Medical Outreach event in San Luis, Venezuela, for people living with Huntington’s disease and those at risk of developing it. More than 100 individuals received comprehensive care—something that would not have been possible without the incredible commitment of 40 volunteers and partners. The next event, scheduled for October […]

Arte hecho a mano: Una Experiencia Transformadora para HD Comunidades de la Costa del Caribe Colombiano

During May and June 2025, the HD communities in Juan de Acosta, Valledupar, Santa Marta, and Algarrobo took part in a series of art workshops that blended tradition, creativity, and personal development. Organized by Factor-H, these activities aimed to strengthen manual skills, stimulate creativity, and provide participants with a meaningful experience of self-expression. Four Artistic […]

Un completo día de la salud para niños y adolescentes de Santa Marta, Colombia

Santa Marta, 10 de mayo de 2025 En el marco del Programa Abrazos, Factor-H celebró una jornada especial dedicada a los niños y adolescentes afectados directa o indirectamente por la enfermedad de Huntington, bajo el lema "Cuidarte es mi prioridad". La actividad, realizada el 10 de mayo en la ciudad de Santa Marta, se centró en la promoción de la salud y la enfermedad [...]

El alcalde de Juan de Acosta en Colombia se reúne con el presidente de Factor-H para discutir la disponibilidad de un espacio para pacientes con EH y su comunidad

El 10 de abril de 2023, el presidente de Factor-H, Ignacio Muñoz-Sanjuan, y miembros del equipo directivo en Colombia, se reunieron con Carlos Manuel Higgins Villanueva, alcalde de Juan de Acosta, para conversar sobre la gestión de un espacio municipal por parte de Factor -H, que tiene por objeto servir como centro de operaciones de los servicios y actividades que presta Factor-H […]

Gratitud Day: Celebrando el 30 aniversario del descubrimiento del gen huntingtin

Hace 30 años, el 23 de marzo, se publicó un artículo histórico de Cell en el que se describía que se había identificado por primera vez la mutación en el gen responsable de la enfermedad de Huntington. Este descubrimiento fue posible gracias a la colaboración entre científicos de diferentes países, -James F. Gusella y colaboradores (The US-Venezuela colaborative research group)- y el […]