Mayor of Juan de Acosta in Colombia meets Factor-H’s president to discuss the availability of a space for HD patients and their community
On April 10, 2023, the President of Factor-H, Ignacio Muñoz-Sanjuan, and members of the management team in Colombia, met with Carlos Manuel Higgins Villanueva, mayor of Juan de Acosta, to discuss the management of a municipal space by Factor-H, which aims to serve as an operations center for the services and activities provided by Factor-H […]
Gratitud Day: Celebrando el 30 aniversario del descubrimiento del gen huntingtin
30 years ago, on March 23, a landmark Cell article was published, describing that the mutation in the gene responsible for Huntington’s disease had been identified for the first time. This discovery was possible thanks to the collaboration between scientists from different countries, –James F. Gusella and collaborators (The US-Venezuela collaborative research group)- and the […]
2022HDLatam Conferencias Día 2-C5: Marina González de Kaufman
From October 19 to 21, Factor-h organized in Barranquilla, Colombia, the 2022 Huntington Latin American Conference with the presence of 35 speakers, among them scientists, researchers, experts in different health fields, HD associations, patients, and families. In her conference on October 20th, architect Marina González de Kaufman, President of Fundación Habitat LUZ, explained to the […]
2022 EH Latinoamerica Conference
(Conference below) From October 19 to 21, Factor-h organized in Barranquilla, Colombia, the 2022 Huntington Latin American Conference with the presence of 35 speakers, among them scientists, researchers, experts in different health fields, HD associations, patients, and families. In his conference on October 20h, Vladimir Marcano, a Venezuelan documentary photographer (1971) published “El Mal” a […]
Despedimos a María Antonia Infante Martínez
Todos nosotros en Factor-h, pensamos en María Antonia Infante Martínez, de Soledad, Barranquilla, en Colombia que nos dejó ayer, 18 de enero. Nuestros pensamientos están más que nunca con su familia. Descanse en paz.
Despedimos a Alcides José Ariza Barraza
Just a few hours of the pass away of Maria Antonia Infante Martínez from Puerto, Barranquilla, we got the news that a second member of our community, Alcides José Ariza Barraza, de Puerto Colombia, also in Barranquilla, has left us. We would like to let his family to know that our thoughts are with them […]
2022HDLatam Conferences Day 1-C3: Selene Capodarca – Global Project Manager for Enroll-HD
From October 19 to 21, Factor-h organized in Barranquilla, Colombia, the 2022 Huntington Latin American Conference with the presence of 35 speakers, among them scientists, researchers, experts in different health fields, HD associations, patients, and families. In her conference on the 19th, Selene Capodarca, an associate of Factor-H and the Enroll-HD Global Project Manager, gave an update […]
#givingtuesday2022 – Vamos a hacerlo memorable!
Today, November 29th is #givingtuesday, please think about people with Huntington in Latin América when giving your donations! Remember, GivingTuesday is a global generosity movement that unleashes the power of radical generosity around the world. Millions of people come together to celebrate generosity, share kindness, and drive record-breaking giving again as we did in 2021. […]
Conferencia Latinoamericana de la EH 2022, testimonios: Juan Carlos Angulo
My name is Juan Carlos Angulo Calderón, I live in Costa Rica, I am 32 years old, and I am the son of a patient with Huntington’s disease in the advanced stage of the process currently, my maternal grandmother died 24 years ago due to this diagnosis. Nurse by profession, I´m founding member and president […]
Conferencia Latinoamericana de la EH 2022: Un cierre lleno de sonrisas.
Gindel Delgado creó un conmovedor video para el cierre de La Conferencia Latinoamericana de la EH 2022, en el que niños procedentes de las áreas afectadas, compartieron sus sonrisas con los participantes a las que se unieron las de muchos de los conferenciantes participantes.
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