A central priority for Factor-H is ensuring that information about clinical research is shared in a way that does not create unrealistic expectations or add to the emotional burden faced by individuals and families affected by Huntington’s disease. While scientific progress is essential and provides reasons for optimism, it is…

During the third quarter of 2025, Factor-H, in partnership with Hábitat Luz, expanded its impact in the communities of San Luis and Barranquitas, reaching a total of 2,045 people, including individuals with Huntington’s disease (HD), their families, and children from the Abrazos Program.

At first, going to Barranquitas felt like stepping into the world of Mad Max. The heat, the dust, the precariousness, the sense that everything could fall apart at any moment. But over time, something shifted. Maybe it was accepting my mission—to help and inspire. Maybe it was realizing that in…

On July 10, 2024, I wrote a reflection piece following the investor conference where uniQure presented the encouraging 24-month results of AMT-130, the first HTT-directed gene therapy delivered directly into the brain regions most severely affected by mutant huntingtin —the caudate and putamen. At that time, early evidence suggested the…

24/09/2025 Ignacio Muñoz-Sanjuan, neuroscientist and founder of the non-profit Factor-H, has expressed optimism that an experimental gene therapy for Huntington’s disease, developed by uniQure and called AMT-130, could receive regulatory approval in the first half of 2026, in what is a very significant milestone for patients and families affected by…

On July 19, Factor H hosted a Medical Outreach event in San Luis, Venezuela, for people living with Huntington’s disease and those at risk of developing it. More than 100 individuals received comprehensive care—something that would not have been possible without the incredible commitment of 40 volunteers and partners. The…

Santa Marta, 10 de maio de 2025 Como parte do Programa Abrazos, a Factor-H realizou um dia especial dedicado às crianças e adolescentes afetados direta ou indiretamente pela doença de Huntington, sob o tema "Cuidar de você é minha prioridade". A atividade, realizada em 10 de maio na cidade de Santa Marta, teve como foco...

O Dia da Gratidão ocorreu em 23 de março de 2025 e culminou uma semana de eventos na Venezuela para homenagear as contribuições das famílias venezuelanas para o avanço da ciência e da medicina. A Factor-H, trabalhando em conjunto com a Habitat LUZ, voluntários da comunidade e profissionais de saúde, organizou uma série de eventos que...

A Factor-H oferece um serviço de assistência jurídica gratuita na Colômbia, com o único objetivo de facilitar o acesso aos serviços, medicamentos e insumos que o Estado colombiano garante a todos os pacientes afetados pela doença de Huntington. O Factor-H tem como objetivo ajudar todas as famílias com EH...

O programa de cuidadores da Factor-H 'La Luz' ganha o prêmio Amgen/MIT Solve 2024 na Concordia Summit Estamos extremamente honrados e honrados com esse prêmio, que financiará nosso programa de apoio a cuidadores na Venezuela. O dinheiro do prêmio será usado para financiar um programa de treinamento de cuidadores, apoiar o acompanhamento psicológico e...