Author: Marina Gonzalez de Kauffman

Fundación Cinco Palabras supports Factor-H Programs in Venezuela

Factor-H coordinates a Social Program in Venezuela for the improvement of the quality of life for individuals and families with Huntington’s disease (HD) in the towns of Barranquitas -Rosario de Perijá Municipality- and the area of the community of San Luis, in the city of Maracaibo, San Francisco Municipality, both in the state of Zulia […]

Gratitude day 2024 – The Candle Light Vigil

The week of Gratitude day, 23rd of March, has seen an inclusion of community events inside the HD communities of San Luis and Barranquitas. The celebration of the partnership between scientists and HD families has taken an unexpected turn this year and also became a celebration of the history of these communities who gave so […]

We did it! Factor-H opens neurology consultation clinic for patients from San Luis, Venezuela

It is a reality that our patients with HD in Venezuela are subsisting in an environment of great precariousness, not only due to their economic limitations but also because specialized health care is inaccessible in Venezuela, since the national public system does not operate properly. Understanding this harsh reality is sometimes difficult for those who […]

Factor-H September 2023 trip to the Maracaibo HD communities​

From September 6-14, 2023, Factor-H visited the HD communities in Barranquitas and San Luis and conducted medical, educational and humanitarian activities with volunteers and affiliated organizations. Below you can see a video summarizing the trip and a detailed diary of our visit. Text by Marina Gonzalez de Kauffman & Ignacio Muñoz-Sanjuán Video by Gindel Delgado; […]

Venezuela: 2022 Holidays

Today, Monday December 26, 2022, was a beautiful day in San Luis, in Maracaibo. Everything started early today … the work of shopping for the Christmas events, packing, and ordering everything to get it organized for all the children we sponsor. Then, we packed our truck, filled to the brim like our hearts today as […]

Dancing with Art

Carmen arrived very quietly and took a seat at a table with a huge blank piece of paper, several brushes and other things that she had never used. She waited quietly, absorbed in the white of the paper, waiting for the others to take her place, and for her question to be answered: “what am […]

32 volunteers working back in Barranquitas!

On Saturday May 21, 52 volunteers from Factor-H where in Maracaibo, Venezuela, giving medical assistant to kids and patients with Huntington Disease.