(On the limits of human suffering)
Huntington’s Disease is a genetic, progressive and fatal neurodegenerative disease. It does not discriminate based on ethnicity or gender. It advances slowly, but relentlessly and affects the whole family.
THE DISEASE. Huntington’s disease (HD) is a rare, hereditary, neurodegenerative disease that typically strikes during mid-life, between 35-55 years old, and is characterized by voluntary and involuntary motor movements, behavioral impairment and cognitive decline, leading to complete dependence, and ultimate death after a slow but unrelenting progression over two decades. Every child of an affected parent has a 50% chance of inheriting the mutated gene and therefore developing the disease. There are treatments for some symptoms of the disease (motoric and psychiatric symptoms), but no therapies slow it or prevent their ultimate demise.