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We did it! Factor-H opens neurology consultation clinic for patients from San Luis, Venezuela

We did it! Factor-H opens neurology consultation clinic for patients from San Luis, Venezuela

It is a reality that our patients with HD in Venezuela are subsisting in an environment of great precariousness, not only due to their economic limitations but also because specialized health care is inaccessible in Venezuela, since the national public system does not operate properly. Understanding this harsh reality is…
Alex Fisher reflects on her trip to visit the Venezuelan HD communities

Alex Fisher reflects on her trip to visit the Venezuelan HD communities

Alex Fisher is an occupational therapist specialized in caring for HD patients from the UK; she works actively with various working groups as part of EHDN, the European HD Network. She visited for the first time the HD communities in Venezuela, together with the Factor-H team, in September 2023. Alex…
Factor-H September 2023 trip to the Maracaibo HD communities​

Factor-H September 2023 trip to the Maracaibo HD communities​

From September 6-14, 2023, Factor-H visited the HD communities in Barranquitas and San Luis and conducted medical, educational and humanitarian activities with volunteers and affiliated organizations. Below you can see a video summarizing the trip and a detailed diary of our visit.Text by Marina Gonzalez de Kauffman & Ignacio Muñoz-SanjuánVideo…
Arepa Day - 22 nonprofits including Factor-H unite in supporting Venezuelan families

Arepa Day - 22 nonprofits including Factor-H unite in supporting Venezuelan families

22 humanitarian organizations = 1 common purpose: to help families in Venezuela Arepa Day is a campaign aimed at improving access to health and nutritional services for Venezuelan families. Global Giving, the non-profit organization that supports other foundations, has selected 22 US-based non-profit foundations focused on helping Venezuelan causes, to…
Seminario del Dr. Muñoz-Sanjuán en la reunión de la sociedad de Neurología venezolana

Seminario del Dr. Muñoz-Sanjuán en la reunión de la sociedad de Neurología venezolana

Seminario del Dr. Ignacio Muñoz-Sanjuan, fundador de Factor-h, en la reunión anual de la sociedad venezolana de neurología, el 3 de junio 2023. Ignacio habla sobre programas terapéuticos actuales para la enfermedad de Huntington, comentando información actual de todos los programas sintomáticos y aquellos dirigidos a disminuir la expresión de…
2022HDLatam Conferences Day 2-C5: Marina González de Kaufman

2022HDLatam Conferences Day 2-C5: Marina González de Kaufman

From October 19 to 21, Factor-h organized in Barranquilla, Colombia, the 2022 Huntington Latin American Conference with the presence of 35 speakers, among them scientists, researchers, experts in different health fields, HD associations, patients, and families. In her conference on October 20th, architect Marina González de Kaufman, President of Fundación…
2022HDLatam Conferences Day 2-C4: Vladimir Marcano

2022HDLatam Conferences Day 2-C4: Vladimir Marcano

(Conference below) From October 19 to 21, Factor-h organized in Barranquilla, Colombia, the 2022 Huntington Latin American Conference with the presence of 35 speakers, among them scientists, researchers, experts in different health fields, HD associations, patients, and families. In his conference on October 20h, Vladimir Marcano, a Venezuelan documentary photographer…
Venezuela: 2022 Holidays

Venezuela: 2022 Holidays

Today, Monday December 26, 2022, was a beautiful day in San Luis, in Maracaibo. Everything started early today … the work of shopping for the Christmas events, packing, and ordering everything to get it organized for all the children we sponsor. Then, we packed our truck, filled to the brim…
2022HDLatam Conferences Day 1-C3: Selene Capodarca - Global Project Manager for Enroll-HD

2022HDLatam Conferences Day 1-C3: Selene Capodarca - Global Project Manager for Enroll-HD

From October 19 to 21, Factor-h organized in Barranquilla, Colombia, the 2022 Huntington Latin American Conference with the presence of 35 speakers, among them scientists, researchers, experts in different health fields, HD associations, patients, and families. In her conference on the 19th, Selene Capodarca, an associate of Factor-H and the Enroll-HD Global…
2022HDLatam Conferences Day 1-C2: Dr. Claudia Perandones

2022HDLatam Conferences Day 1-C2: Dr. Claudia Perandones

From October 19 to 21, Factor-h organized in Barranquilla, Colombia, the 2022 Huntington Latin American Conference with the presence of 35 speakers, among them scientists, researchers, experts in different health fields, HD associations, patients, and families. In her conference on the 19th, Factor-h’s co-founder Dra. Claudia Perandones, spoke about the “Relevance of…
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