Factor-H President is interviewed for the Rare Disease Advisor
On November 5th, Larry Luxner, journalist and senior correspondent for the Rare Disease Advisor network, interviewed Dr. Ignacio Muñoz-Sanjuan about Factor-H work in Latin America.
(The human factor)
US. At Factor-H, we are a group of people coming from many different professions, countries and world-views. We are clinicians, scientists, social workers, educators, artists, and affected families… coming together to help people affected by Huntington’s disease and living in conditions of extreme vulnerability. We are united in our quest for social justice and for the defense of every person’s potential for self-realization. Working together today to improve the future of our friends affected by HD.
In a scientific world where we want to measure and quantify everything, how do we measure the impact that hope has in a person or in a community?
Ignacio Muñoz-Sanjuán,
President and founder
If you want to explore more, you can find WHERE we currently develop our activities, who forms OUR TEAM, the four PILLARS on which we build our strategy, OUR COMMUNITY of partners, friends and people like you that make our work posible, and… of course, if you want to know about our ACCOUNTABILITY, you may do so by viewing our annual reports and financial statements. Finally, read more about our work in the PRESS section.
In 2012, Factor-H was created to help to improve the quality of life of people affected with Huntington disease living in extreme conditions of poverty and social neglect. We work with the communities in Latin American most affected by this terrible disease. We want to change their conditions today by providing basic assistance, and provide resources for them to improve their current living conditions. We also work to help new generations of at-risk individuals grow up with a healthier and more supportive environment, and with more opportunities to thrive and help one another.
To understand why Factor-H started please READ HERE
2020 was a year like no other.
The global Covid-19 pandemic impacted the entire world, but it has taken a heavy toll on poor communities around the world. Most of the families we assist live in vulnerable conditions, and their access to employment and medical assistance were significantly impacted. We reacted to these challenges by organizing a large campaign to assist our communities. More than 400 families were received food, masks and disinfectants monthly for most of 2020. Overall, 2000 family members were aided through our program. We also instituted online educational campaigns as well as via our social agents. An emergency program… KEEP READING
On November 5th, Larry Luxner, journalist and senior correspondent for the Rare Disease Advisor network, interviewed Dr. Ignacio Muñoz-Sanjuan about Factor-H work in Latin America.
On November 07, 2024, Factor-H will host a fundraising event in Los Angeles to support our ongoing programs in Latin America. Factor-H is proud to
Factor-H ‘La Luz’ Caregivers program wins the 2024 Amgen/MIT Solve award at the Concordia Summit We are extremely honored and humbled by this award, which
Factor-H is a registered 501-(c)3 non-profit foundation in the United States (EIN 82-5395108)