(On the limits of human suffering)
Huntington’s Disease is a genetic, progressive and fatal neurodegenerative disease. It does not discriminate based on ethnicity or gender. It advances slowly, but relentlessly and affects the whole family.
THE DISEASE. Huntington’s disease (HD) is a rare, hereditary, neurodegenerative disease that typically strikes during mid-life, between 35-55 years old, and is characterized by voluntary and involuntary motor movements, behavioral impairment and cognitive decline, leading to complete dependence, and ultimate death after a slow but unrelenting progression over two decades. Every child of an affected parent has a 50% chance of inheriting the mutated gene and therefore developing the disease. There are treatments for some symptoms of the disease (motoric and psychiatric symptoms), but no therapies slow it or prevent their ultimate demise.
Seminario del Dr. Ignacio Muñoz-Sanjuan, fundador de Factor-h, en la reunión anual de la sociedad venezolana de neurología, el 3 de junio 2023. Ignacio habla
Factor-H quiere compartir esta Guía Para el Cuidador, que puede ser extremadamente útil como referencia básica también en la EH. La Guía está creada por
Factor-H recomienda y quiere dar difusión a una guía alimentaria elaborada por profesionales del Hospital de Burgos en España, que tiene como objetivo “contribuir a
Factor-H is a registered 501-(c)3 non-profit foundation in the United States (EIN 82-5395108)
English 
Spanish 
Portuguese