A New Beginning Amid Adversity: Johana’s Journey Facing Huntington’s Disease
Eight years ago, Johana Oviedo Barrios, a mother of three and a patient with Huntington’s disease from El Dificil, Magdalena State, Colombia was living in conditions of extreme vulnerability. Without access to basic services, a proper bed, or even a functional bathroom, her living conditions posed serious risks to her health and dignity. Johana lived […]
Small gestures matter – building Dilia Oviedo a mausoleum for her family
Dilia Oviedo Güillín, a woman of unwavering spirit and strength, always dreamed of reuniting her deceased husband and children in a place where they could rest in peace together. From an early age, life presented her with numerous challenges, including a disease that would change her life completely, “Huntington’s Disease”, but she never let her […]
Donations of school supplies in Colombia – Kids program
By Arnel Arroyo Díaz We celebrate another milestone in our mission to support the most vulnerable HD communities! We are proud to share that we have once again delivered school kits to families afflicted with Huntington’s disease in more than 10 municipalities on the Colombian Caribbean coast. This effort has benefited more than 145 children […]
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