Some pictures to end the year and welcome a new one

We are very fortunate at Factor-H to count on the friendship and talent of amazing individuals working in the visual arts. Over the years, documenting the lives of people with Huntington’s disease in their communities has been essential to our mission – if we can’t capture the humanity behind the disease, the love between kids […]

Meet Ignacio – a CRL interview

Meet our second disruptor Ignacio Muñoz-Sanjuán. Find out how Ignacio’s work is enabling organizations to develop novel therapies for Huntington’s disease. Through his drug discovery work at CHDI Foundation, a nonprofit organization, Ignacio fuels his motivation to uncover potential treatments and an eventual cure for this crippling transgenerational disease by partnering with multiple organizations with […]

The LA PEP Program: the first recipient from Maracaibo starts training in Barcelona

Dr. Rey Varela en Barcelona

The LA PEP program (Latin American Professional Exchange Program) got started a week ago! This program aims to identify aspiring young health professionals working in the HD communities we serve, and facilitate fellowships for them to get training experience at leading HD institutions and hospitals in Spain, Colombia, and Chile. The goal is to motivate […]

Charlie Cordero, Colombian photographer joins our Art4HD program

BRIEF BIOGRAPHY Charlie Cordero is a 31-year-old documentary photographer based in Colombia. He has studied Photojournalism at the ERAM audiovisual and multimedia school (University of Girona) in Girona, Spain and a Masters in Editorial Photography and Photojournalism at the TAI School of Arts and Entertainment (Rey Juan Carlos University) in Madrid, Spain. The recurring themes […]

Tackling Huntington’s Disease from All Angles

Perking Elmer

One Scientist’s Journey to Change the Status Quo Even with the strides in research that scientists have made in the last few decades, the innerworkings of the brain remain a mystery. Neurological diseases like Huntington’s, Parkinson’s,and Alzheimer’s are just three out of many potentially devastating diagnoses clinicians havethe difficult task of communicating to their patients […]

New podcast from CRL describes Factor-H

A few weeks ago, the scientific organization Charles River Laboratories (CRL) did a series on ‘inspiring scientists’ that showcase their work. Our President, Ignacio Muñoz (nacho) was featured in a documentary and a podcast. The podcast is now out. In it, Nacho is interviewed about his scientific work and the origins and mission of Factor-h. […]

Basic assistance program

Delivering basic assistance such as food, soap, detergents, and disinfectants provides a life line for many families.

Legal assistance program

The legal assistance program has been operating informally in Colombia and Venezuela for a few years. Recently, Factor-H decided to establish a more structured effort to reach more families and have more of an impact. In Colombia, Factor-H works with volunteer lawyer Carlos Enrique Diaz, who has been assisting families for years, first under the […]

The Gene

About Huntington’s disease (HD) HD is a rare autosomal dominant neurodegenerative disease that typically strikes during mid-life, between 35-55 years old, and is characterized by voluntary and involuntary motor movements, behavioral impairment and cognitive decline, leading to complete dependence, and ultimate death after a slow but unrelenting progression over two decades. The prevalence of manifest […]