Factor-H has been supporting and working alongside the Peruvian association for several years now. The region of the Cañete province constitutes one of the largest clusters of HD in the world. The association is supporting the needs of 49 families afflicted with HD and a total of 80 patients.
During the month of April, the Peruvian association Familias Huntington Peru, visited the homes of 12 families living in conditions of vulnerability in the municipalities of Cañete and Lunahuaná, a couple of hours’ drive south of the capital Lima. During this event, the association brought clothes, food baskets, diapers and nutritional supplements for the patients.
This is the first visit to these families in 2024; the visit also allows the association to understand the needs of these families, and to communicate with them about ongoing programs to increase medical & physical rehabilitation access, as well as to interact with at-risk youth. Factor-H promotes a level of holistic care that encompasses a close relationship with leading neurologists, educational campaigns for youth and caregivers, as well as recreational activities to bring these families together. The association also assists families with the legal proceedings to access disability support from the Peruvian government for those who qualify. Their work provides a life-line of support for these families, many of whom experience conditions of extreme vulnerability.
Since 2023, the Peruvian association has been working closely with Caritas Peru, extending their support for the families. Professionals affiliated with Caritas are assisting in the areas of occupational therapy, physical rehabilitation classes, and access to psychological support for caregivers and at-risk youth.
Please check out the association YouTube channel for more information of their work HERE
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