Un resumen de los programas activos para el silenciamiento de la Huntingtina
El presidente de Factor-H expone su primera reacción y hace un primer análisis tras la noticia de la suspensión de los estudios de Fase III de Roche con Tominerse, y expone un resumen de los programas que siguen activos. Estimados amigas y amigos, esta semana ha sido una de las semanas más difíciles para toda […]
A collection of short stories about HD affected individuals from Colombia
A BOOK OF SHORT STORIES BY TATIANA HINOJOSA FROM VALLEDUPAR Tatiana Hinojosa is a well-known writer and teacher from Valledupar, Colombia. Tatiana went to grammar school with Leyla Mieles, an associate of Factor-H in Colombia, who introduced our mission to Tatiana, who quickly became aware of the need to increase knowledge about the disease in […]
Letter from the President
2020 was a year like no other. The global Covid-19 pandemic impacted the entire world, but it has taken a heavy toll on poor communities around the world. Most of the families we assist live in vulnerable conditions, and their access to employment and medical assistance were significantly impacted. We reacted to these challenges by organizing […]
Greetings from a New Year
It is now 9:52pm in Los Angeles and it is officially my birthday in Spain. I was born at 8am on the 8th January of 1972 – 49 years ago today. As I write this, life is the USA is very complicated – we have had an attack on democratic institutions and the Covid epidemic […]
Art 4 HD – collaboration with illustrator Matt Rota
Matt Rota is an illustrator who has recently become associated with our kids’ program at Factor-H. Below are some of the illustrations he created recently for some poems I wrote about the kids to commemorate the completion of the 5th year of the program in Colombia. What began as an attempt to help a few […]
Una pastilla para tratar la enfermedad de Huntington?
Si me hubiesen preguntado hace unos años que en el 2020 empezaríamos estudios clínicos con una terapia en pastilla que trataría la causa de la enfermedad, no me lo hubiera creído. Durante mucho tiempo, desde que empecé a trabajar como científico en la fundación CHDI, he trabajado mucho en el desarrollo de terapias experimentales que […]
Factor-H starts microcredit program in Colombia
The Sierra de Oro family lives in the Caribbean region in Northern Colombia, in the municipality of Sábanas de San Angel in the Department of Magdalena. Factor-H has been working with this family for a number of years. The family was chosen as the first recipient of a new microcredit program, aimed at helping HD […]
Nacho speaks about Factor-H at HSG conference 2020 – Insights of the Year
On November 30th, Nacho spoke about the mission, vision, and goals of Factor-H at the 2020 conference of the Huntington Study Group (HSG), a well-known and leading clinical research organization. Nacho spoke as the Insights of the Year speaker. The conference is about 35’ long and contains some videos, followed by a Q&A session. In […]
Meet Brayan – the video
<br /> A few months ago I wrote a story about meeting Brayan, a young kid at risk for HD from Barranquitas, Venezuela (see blog post “Reflections on instilling a sense of hope”). Together with colleagues Matt Rota (https://www.mattrotasart.com) and Nicanor Cardeñosa, we put together a narrated illustrated story of that encounter. You can see […]
The story of Yohandri
by Tatiana Hinojosa Translated by Amanda Kauffman MY HOPE There are some moments where I think that life should be like a fantasy story, where we the children live in beautiful houses and wake up with the smell of spring flowers… When I was four, I was a very judicious girl, those who knew me […]
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