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Gratitude Day: Celebrating the 30th anniversary of the discovery of the huntingtin gene

Huntington Gratitude Day

30 years ago, on March 23, a landmark Cell article was published, describing that the mutation in the gene responsible for Huntington’s disease had been identified for the first time. This discovery was possible thanks to the collaboration between scientists from different countries, -James F. Gusella and collaborators (The US-Venezuela collaborative research group)- and the […]

2022HDLatam Conferences Day 2-C5: Marina González de Kaufman

From October 19 to 21, Factor-h organized in Barranquilla, Colombia, the 2022 Huntington Latin American Conference with the presence of 35 speakers, among them scientists, researchers, experts in different health fields, HD associations, patients, and families. In her conference on October 20th, architect Marina González de Kaufman, President of Fundación Habitat LUZ, explained to the […]

2022HDLatam Conferences Day 2-C4: Vladimir Marcano

(Conference below) From October 19 to 21, Factor-h organized in Barranquilla, Colombia, the 2022 Huntington Latin American Conference with the presence of 35 speakers, among them scientists, researchers, experts in different health fields, HD associations, patients, and families. In his conference on October 20h, Vladimir Marcano, a Venezuelan documentary photographer (1971) published “El Mal” a […]

Farewell to Maria Antonia Infante Martínez

All of us at Factor-h are honoring the memory of Maria Antonia Infante Martínez, from Soledad, Barranquilla, who left us yesterday, January 18. Our thoughts are, more now than ever, with her family. Rest in peace.

Farewell to Alcides José Ariza Barraza

Just a few hours of the pass away of Maria Antonia Infante Martínez from Puerto, Barranquilla, we got the news that a second member of our community, Alcides José Ariza Barraza, de Puerto Colombia, also in Barranquilla, has left us. We would like to let his family to know that our thoughts are with them […]

2022HDLatam Conferences Day 1-C3: Selene Capodarca – Global Project Manager for Enroll-HD

From October 19 to 21, Factor-h organized in Barranquilla, Colombia, the 2022 Huntington Latin American Conference with the presence of 35 speakers, among them scientists, researchers, experts in different health fields, HD associations, patients, and families. In her conference on the 19th, Selene Capodarca, an associate of Factor-H and the Enroll-HD Global Project Manager, gave an update […]

#givingtuesday2022 – Let’s make it memorable

Today, November 29th is #givingtuesday, please think about people with Huntington in Latin América when giving your donations! Remember, GivingTuesday is a global generosity movement that unleashes the power of radical generosity around the world. Millions of people come together to celebrate generosity, share kindness, and drive record-breaking giving again as we did in 2021. […]

2022 Latin American HD Conference testimonials: Juan Carlos Angulo Calderón

My name is Juan Carlos Angulo Calderón, I live in Costa Rica, I am 32 years old, and I am the son of a patient with Huntington’s disease in the advanced stage of the process currently, my maternal grandmother died 24 years ago due to this diagnosis. Nurse by profession, I´m founding member and president […]

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