Author: Nicanor

Ignacio Muñoz-Sanjuan: “We may see a Huntington’s therapy approved in 2026. It is a day for hope: while the therapy will at first be limited, access will increase in the years ahead”

24/09/2025 Ignacio Muñoz-Sanjuan, neuroscientist and founder of the non-profit Factor-H, has expressed optimism that an experimental gene therapy for Huntington’s disease, developed by uniQure and called AMT-130, could receive regulatory approval in the first half of 2026, in what is a very significant milestone for patients and families affected by the disorder. “It is a […]

Medical Outreach in San Luis: Over 100 Beneficiaries

On July 19, Factor H hosted a Medical Outreach event in San Luis, Venezuela, for people living with Huntington’s disease and those at risk of developing it. More than 100 individuals received comprehensive care—something that would not have been possible without the incredible commitment of 40 volunteers and partners. The next event, scheduled for October […]

Handmade Art: A Transformative Experience for HD Communities of the Colombian Caribbean Coast

During May and June 2025, the HD communities in Juan de Acosta, Valledupar, Santa Marta, and Algarrobo took part in a series of art workshops that blended tradition, creativity, and personal development. Organized by Factor-H, these activities aimed to strengthen manual skills, stimulate creativity, and provide participants with a meaningful experience of self-expression. Four Artistic […]

A comprehensive health day for children and adolescents in Santa Marta, Colombia

Santa Marta, May 10, 2025 As part of the Abrazos Program, Factor-H held a special day dedicated to children and adolescents directly or indirectly affected by Huntington’s disease, under the theme “Caring for you is my priority.” The activity, held on May 10 in the city of Santa Marta, focused on health promotion and disease […]

Mayor of Juan de Acosta in Colombia meets Factor-H’s president to discuss the availability of a space for HD patients and their community

On April 10, 2023, the President of Factor-H, Ignacio Muñoz-Sanjuan, and members of the management team in Colombia, met with Carlos Manuel Higgins Villanueva, mayor of Juan de Acosta, to discuss the management of a municipal space by Factor-H, which aims to serve as an operations center for the services and activities provided by Factor-H […]

Gratitude Day: Celebrating the 30th anniversary of the discovery of the huntingtin gene

30 years ago, on March 23, a landmark Cell article was published, describing that the mutation in the gene responsible for Huntington’s disease had been identified for the first time. This discovery was possible thanks to the collaboration between scientists from different countries, -James F. Gusella and collaborators (The US-Venezuela collaborative research group)- and the […]

2022HDLatam Conferences Day 2-C5: Marina González de Kaufman

From October 19 to 21, Factor-h organized in Barranquilla, Colombia, the 2022 Huntington Latin American Conference with the presence of 35 speakers, among them scientists, researchers, experts in different health fields, HD associations, patients, and families. In her conference on October 20th, architect Marina González de Kaufman, President of Fundación Habitat LUZ, explained to the […]

2022HDLatam Conferences Day 2-C4: Vladimir Marcano

(Conference below) From October 19 to 21, Factor-h organized in Barranquilla, Colombia, the 2022 Huntington Latin American Conference with the presence of 35 speakers, among them scientists, researchers, experts in different health fields, HD associations, patients, and families. In his conference on October 20h, Vladimir Marcano, a Venezuelan documentary photographer (1971) published “El Mal” a […]

Farewell to Maria Antonia Infante Martínez

All of us at Factor-h are honoring the memory of Maria Antonia Infante Martínez, from Soledad, Barranquilla, who left us yesterday, January 18. Our thoughts are, more now than ever, with her family. Rest in peace.

Farewell to Alcides José Ariza Barraza

Just a few hours of the pass away of Maria Antonia Infante Martínez from Puerto, Barranquilla, we got the news that a second member of our community, Alcides José Ariza Barraza, de Puerto Colombia, also in Barranquilla, has left us. We would like to let his family to know that our thoughts are with them […]