New video of the kids program in Colombia

Our New Horizons program continues to evolve. Through a house-by-house survey we conducted in 2021, we have identified many more kids at-risk for HD living in very difficult conditions. This video clearly displays the environmental context in which many of the kids enrolled in the program since 2015 live, many of whom reside in rural […]

Medical Assistance Program

Improving access to healthcare has been at the core of Factor-H’s mission since its inception, knowing that health systems are usually under-prepared to optimally serve the rare diseases, and the situation in which HD families live in many regions of Latin-America makes the situation even more complex. The strategic planning that Factor-H recently concluded emphasizes […]

Special Assistance Program​

Why we need a special assistance program and why we need to expand it We know many of the families we represent experience dire circumstances. We cannot help everyone all the time. Aside from our basic assistance program, we established a Special Assistance program to address particularly difficult situations. Only a few individuals so far […]

Educational Strategies for youth​

Education takes many forms. We approach the issue of educating our friends, depending on their ages, from various angles. We work with educators and psychologists to help them cope with the specter of the disease and the very difficult situations they experience at home, and because of the fact that they are all at risk […]

Programa Nuevos Horizontes​ (New Horizons). Re-structure of the Abrazos Program

Objective of the re-structuring To implement a restructuring of the existing Abrazos Program to provide equity, physical and mental health to all children and adolescents of families affected by Huntington’s Disease (HD) in Colombia and Venezuela. extends prior Abrazos Program to cover all children living in HD families, regardless of socioeconomic status; establishes age-dependent strategies, […]

The Latin American Professional Exchange Program (LA PEP)

The LA PEP program’s main objective is to provide educational opportunities to health professionals that work in Latin American enclaves with a high incidence of Huntington’s disease. Health & Disease Management is one of the main areas of focus of Factor-H and one of the main programs is what we call LA PEP (The Latin American Profesional […]

THE YAS STUDY from the Tabrizi group sheds light on earliest changes in HD

How the brain adapts itself to daily life situations and to internal or external insults has always been a fundamental question for science and medicine. In the case of HD, an essential quest has been to measure how the brain adapts to the presence of defective huntingtin protein in its cells, resisting the impact that […]