Colombia Areas
Affected communities • Magdalena (El Difícil y San Ángel) • Juan de Acosta • Antioquía • Chocó • Bogotá Participating physicians • Dra. Natalia Costa Baena • Dra. Sonia Moreno • Dr. Oscar Bernal • Dr. Guillermo A. Monsalve Duarte • Dr. Mike Espinoza Participating community advocates Asociación Colombianos por la Enfermedad de Huntington “acolpEH” […]
Evolution, Huntingtin and Cancer?
A recent manuscript by a Swedish group (Ji et al., The Lancet, 2012) has revealed that the incidence of cancers amongst individuals bearing mutant expanded polyglutamine genes (and particularly Huntingtin expansions) is significantly lower than in the general population, even after adjusting for age. This study is a continuation of previous work done by this […]
Visit to Colombian Communities by Factor-H (February 2013)
Recently Claudia Perandones and I took our first trip to visit some the affected communities in Colombia. A map of our trip is included here. This was a very important trip for us and for all affected by HD. We met with health officials, township mayors, local patient representatives (Janeth Mosquera and Mariela Campo), and many […]
Factor-H visit to Familia Oviedo Oviedo in the news
Recently Factor-H visited Colombia (February 2013). During this visit, we went to meet the Family Oviedo Oviedo from the town of El Dificil, Magadalena. The local TV news station, El Caracol, filmed a documentary on the family and our humanitarian projects. We were accompanied by the local patient association representative, Mariela Campo, and Janeth Mosquera […]
Factor-H and HD in Latin America in The Lancet Neurology
Recently, Adrian Burton, a medical writer, published an article about HD in Latin America which focused largely on the efforts of Factor_H in this continent. You can download the article by clicking on the link below. Enjoy reading it! The Lancet article
Visiting Colombia and Venezuela
Claudia Perandones (Scientific Director of the Latinamerican network for HD) and myself will be visiting several of the affected communities in the upcoming days. We will visit some of the most devastated communities in Colombia and around lake Maracaibo in Venezula from february 23 through March 3, 2013. During this visit, we will speak to […]
Visiting the Colombian and Venezuelan communities
Dear all – I am sure you are all aware of the importance of the Maracaibo communities in Venezuela for HD research. The incredible milestone of identifying the Huntingtin gene was possible because of the cooperation of the peoples of Venezuela. The large cluster in Maracaibo, the largest in the world as we know today, […]
Happy 2013!
JAN01 2013 Lets hope for a great 2013 for all those living with HD and those working to find treatments! This will be a critical year in the development of new therapies for HD- several new investigational treatments will enter clinical trials, including novel molecular approaches to treat HD… it will also see a […]
Factor-H in the Argentinian news…
Please read the article below, when we launched Factor-H in Argentina… article featuring Ignacio Munoz-Sanjuan, Claudia Perandones, and Charles Sabine (an HD carrier), published in the Clarin newspaper following an interview in Buenos Aires. Clarin Article
Factor_H launches in Mendoza, Argentina
Official launch event for Factor-H in Mendoza, Argentina The official launch of Factor_H took place in the Sheraton hotel in Mendoza, Argentina, on October 12, 2012. The event included a seminar by Charles Sabine (see links here for youtube videos of his HD seminars; link), a friend and collaborator who flew from London to help […]
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