Author: Ignacio Munoz

Tackling Huntington’s Disease from All Angles

One Scientist’s Journey to Change the Status Quo Even with the strides in research that scientists have made in the last few decades, the innerworkings of the brain remain a mystery. Neurological diseases like Huntington’s, Parkinson’s,and Alzheimer’s are just three out of many potentially devastating diagnoses clinicians havethe difficult task of communicating to their patients […]

New podcast from CRL describes Factor-H

A few weeks ago, the scientific organization Charles River Laboratories (CRL) did a series on ‘inspiring scientists’ that showcase their work. Our President, Ignacio Muñoz (nacho) was featured in a documentary and a podcast. The podcast is now out. In it, Nacho is interviewed about his scientific work and the origins and mission of Factor-h. […]

Basic assistance program

Delivering basic assistance such as food, soap, detergents, and disinfectants provides a life line for many families.

Surveys of Affected Regions – tracking families as the first step to advocacy

In spite of the fact that the regions flanking Lake Maracaibo in Venezuela, the Caribbean Coast of Colombia and the province of Cañete, in Perú, have the highest incidence of HD in the world does not mean we know how many people are affected or at risk. The work conducted by Nancy Wexler and team […]

Legal assistance program

The legal assistance program has been operating informally in Colombia and Venezuela for a few years. Recently, Factor-H decided to establish a more structured effort to reach more families and have more of an impact. In Colombia, Factor-H works with volunteer lawyer Carlos Enrique Diaz, who has been assisting families for years, first under the […]

The Gene

About Huntington’s disease (HD) HD is a rare autosomal dominant neurodegenerative disease that typically strikes during mid-life, between 35-55 years old, and is characterized by voluntary and involuntary motor movements, behavioral impairment and cognitive decline, leading to complete dependence, and ultimate death after a slow but unrelenting progression over two decades. The prevalence of manifest […]

An evidence-based clinical consensus for Latin America

Objectives of the Clinical Practice Guidelines for the Management of Huntington’s Disease in Latin America In 2020, Factor-h obtained a grant from Roche for a project to generate an evidence-based clinical consensus for Latin America countries. The general objective of this consensus is to approach the health problems and improve the standard of living of symptomatic […]

The microcredit program aims to help families escape the poverty cycle

Merriam-Webster Definition of Microfinance: “Financial services especially in the form of microloans provided to impoverished individuals and groups in poor and developing regions.” For Factor-H, microfinance is more than just a financial service. It is a tool to empower members of the disadvantaged HD communities, helping them become more resilient and financially independent. Methodology We […]

CASA DIGNIDAD – a day center for Barranquitas

C.A.S.A DIGNIDAD – A HOUSE FOR ALL by Marina Kauffman, president of Fundación Habitat LUZ The first time I went to Barranquitas, I was impressed by the beauty of its surroundings. A hidden place, almost untouched, to which an unfinished path leads but full of visual surprises. To see lagoons with birds reminiscent of the […]

Art4HD Program

The beginning of Factor-H took place in Mendoza, Argentina, in 2012, and we celebrated the beginning of our journey together as a team through music and dance. A tango troupe volunteered to take us into a magical and complex journey – one that we continue to take together through our humanity. Art has always been […]