Art4HD Program
The beginning of Factor-H took place in Mendoza, Argentina, in 2012, and we celebrated the beginning of our journey together as a team through music and dance. A tango troupe volunteered to take us into a magical and complex journey – one that we continue to take together through our humanity. Art has always been […]
What is Factor-H?
A non-for-profit humanitarian project to increase the awareness of people living with and affected by Huntington’s disease, to facilitate social aid to diminish the suffering of local communities in Latin America. An effort to unite socially minded individuals through creative artistic, journalistic, medical, scientific, and political means to change the neglect and suffering of those […]
Intersection: Huntington and poverty in the Latin-American clusters
Huntington’s disease (HD) is a genetic, fatal, and progressive neurodegenerative disease. HD does not discriminate based on ethnicity or gender. It advances slowly, but relentlessly. The disease is caused by mutations in a single gene, called Huntingtin, and the penetrance of the mutation is 100%. If one is born with a Huntingtin mutation, today one will die from Huntington’s […]
State of Therapeutic Programs
From a gene mutation to a lethal disease HD is caused by a single mutation in a region of the HTT gene, located at the beginning of the gene (in exon 1), which contains a repeat sequence comprised of CAG repeats; in the normal range, people have between 17-22 repeats on average; in HD individuals, […]
Telemedicine & Emergency assistance Program
Un resumen de los programas activos para el silenciamiento de la Huntingtina
El presidente de Factor-H expone su primera reacción y hace un primer análisis tras la noticia de la suspensión de los estudios de Fase III de Roche con Tominerse, y expone un resumen de los programas que siguen activos. Estimados amigas y amigos, esta semana ha sido una de las semanas más difíciles para toda […]
A collection of short stories about HD affected individuals from Colombia
A BOOK OF SHORT STORIES BY TATIANA HINOJOSA FROM VALLEDUPAR Tatiana Hinojosa is a well-known writer and teacher from Valledupar, Colombia. Tatiana went to grammar school with Leyla Mieles, an associate of Factor-H in Colombia, who introduced our mission to Tatiana, who quickly became aware of the need to increase knowledge about the disease in […]
Letter from the President
2020 was a year like no other. The global Covid-19 pandemic impacted the entire world, but it has taken a heavy toll on poor communities around the world. Most of the families we assist live in vulnerable conditions, and their access to employment and medical assistance were significantly impacted. We reacted to these challenges by organizing […]
Greetings from a New Year
It is now 9:52pm in Los Angeles and it is officially my birthday in Spain. I was born at 8am on the 8th January of 1972 – 49 years ago today. As I write this, life is the USA is very complicated – we have had an attack on democratic institutions and the Covid epidemic […]
Art 4 HD – collaboration with illustrator Matt Rota
Matt Rota is an illustrator who has recently become associated with our kids’ program at Factor-H. Below are some of the illustrations he created recently for some poems I wrote about the kids to commemorate the completion of the 5th year of the program in Colombia. What began as an attempt to help a few […]
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