THEM. People like you and me… kids, young adults, parents, siblings, sons and daughters … some have already begun to develop symptoms of the disease. Others talk about relatives who cannot take care of themselves anymore. And many wait, day after day, for the moment when the gene, like a strange inheritance they do not welcome, might also arrive into their lives, when the first signs of the disease appear in themselves or their siblings, or in their kids. But regardless of their situation, all of them have the added burden of living in conditions of extreme vulnerability, which compounds their situation of living with, or suffering from, Huntington’s disease.
Guaranteering the right tohealth
Access to multidisciplinary and quality care for HD patients
Education for families and individuals
Genetic testing & genetic counseling
Professional training strategies
Access to medicines
Health related legal assistance
Clinical consensus for Latin America
EmpoweringFamilies & Communities
Basic assistance for families in extreme vulnerable situations
Special assistance – home improvements, access to water & electricity, funeral services
Promoting educational opportunities
Promoting livelihoods (microcredit program)
Community Day Centers
Resilient, informed & empowerednew generations
Promoting the right to play
Facilitating access to education: training and capacity building
Promoting gender equality
Promoting health and reproductive rights
Youth mobilization
Access to psychological support
Recreational gatherings – building youth communities
Holding duty bearers toaccount
Identifying families
Data collection via surveys – medical & socio-economic
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