Some news about Factor-H In the press...

El papa consuela a enfermos de Huntington

El papa francisco recibió en una audiencia especial a unos quinientos enfermos de Huntington acompañados de sus familias y benefactores. Según especialistas, esta enfermedad que no tiene cura tiene mayor incidencia en América Latina. Por Natalia Mendoza, CNN Español Publicado a las 15:45 ET (19:45 GMT) 23 mayo, 2017 VER NOTICIA

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Support communities involved in disease studies

Lack of continued help for poor families involved in Huntington’s-disease research has sown resentment and mistrust, says Ignacio Muñoz-Sanjuan. By Ignacio Muñoz-Sanjuan After decades of research, a genetic therapy for Huntington’s disease is being tested in clinical trials. Sponsored by Swiss pharmaceutical firm Roche and US-based Ionis Pharmaceuticals, this trial

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Hunting for help in South America

With potential treatments for Huntington’s disease on the horizon, long-moot questions of responsibility towards Latin American communities are being felt acutely. But will the people who contributed to landmark research ever reap its benefi ts? Dara Mohammadi investigates By: Dara Mohammadi It’s dusk in a housing project on the outskirts

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New article about Colombia and Factor-H in the Lancet Neurology

Dara Mohammadi just wrote a final piece from the trip we took together to Colombia in April 2016. You can find the pdf of the article here: HD Colombia Lancet Also read about Enroll-HD efforts here: Please note that even though efforts to initiate Enroll-HD are underway in Colombia,

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  • Article at EHDN Newsletter, 2019, by Ignacio Muñoz-Sanjuán