“Gratitude Day is a way to honor the collaboration of HD families with clinicians and scientists, which started with the efforts to identify the Huntington’s disease gene in the 1980s, and that continues to these days through various efforts around the world to find treatments for the disease” March 23rd
The December issue of the Moving Along magazine of the Movement Disorder Society published a reflection article about the scientific and humanitarian trajectory of Factor-H founder, Ignacio Muñoz-Sanjuan. The article was written in response to the Public Service Award given to Ignacio in September 2024, for the work Factor-H has
On November 5th, Larry Luxner, journalist and senior correspondent for the Rare Disease Advisor network, interviewed Dr. Ignacio Muñoz-Sanjuan about Factor-H work in Latin America. Larry also spoke with Marina Kauffman who leads Factor-H work in Venezuela. In the accompanying podcast, Ignacio shares his journey from 2012 when he launched
On November 07, 2024, Factor-H will host a fundraising event in Los Angeles to support our ongoing programs in Latin America. Factor-H is proud to present the US premiere for two documentary films about Huntington’s disease – The Light (The story of the Informal Caregivers for Huntington’s patients in Barranquitas, Venezuela, by
Factor-H ‘La Luz’ Caregivers program wins the 2024 Amgen/MIT Solve award at the Concordia Summit We are extremely honored and humbled by this award, which will fund our caregivers support program in Venezuela. The prize money will be used to fund a caregivers’ training program, support out ongoing psychological and
We are honored to be 1 of 5 finalist nonprofit organizations being nominated for this prestigious award, selected out of 90 applicant organizations. The award of US$150,000 will be given to one of the five finalists. The Amgen Prize 2024 rewards innovative in rare disease patient care. Factor-H submitted an
In the recent EHDN Newsletter, Factor-H work is featured in two articles – the first launches the 2024 Gratitude Day campaign; the second is by Alex Fisher, who tells her story of coming to Venezuela and the work she is conducting together with Factor-H & Habitat LUZ in Maracaibo to
Elena Cattaneo, leading scientist in HD research and a Senator for Life in Italy, has written this piece for the newspaper La Reppublica, detailing the identification of the cloning of the mutation that causes HD. Dr. Cattaneo is a consultant for Factor-H and a dear friend and supporter. In this
Ruth Blanco, president of the HD association in Spain & coordination of the European Huntington’s (EHA) program ‘Moving Forward‘ for Spain, conducted a series of interviews to support Factor-H Gratitude Day campaign. Ruth interviewed several scientists and family advocates from Europe, the USA and Venezuela, including Ignacio Muñoz-Sanjuán, to discuss
Factor-H is a registered 501-(c)3 non-profit foundation in the United States (EIN 82-5395108)
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