We are honored to be 1 of 5 finalist nonprofit organizations being nominated for this prestigious award, selected out of 90 applicant organizations. The award of US$150,000 will be given to one of the five finalists.
The Amgen Prize 2024 rewards innovative in rare disease patient care.
Factor-H submitted an application to fund our caregivers’ support program for the Venezuelan communities. The program is led by Alex Fisher who has become an integral member of Factor-H, working closely with the Habitat LUZ team in Venezuela.
The Amgen Prize seeks innovative solutions from nonprofit organizations and NGOs around the world that improve the journey of patients with rare diseases, from diagnosis to treatment and holistic care. The winner will be announced on the East Stage at the Concordia Summit in NYC on September 25, 2024. The agenda for the 14th annual Concordia Summit can be found HERE. The theme for the Summit is Navigating a New Era.
Below you can find the pitch video Ignacio Muñoz-Sanjuan presented for the Amgen Prize, and the trailer of our new documentary about the lives of the HD informal caregivers in Barranquitas, produced and directed by our colleague Gindel Delgado from Caracas, Venezuela.
The documentary will be screened at the EHDN conference this week and will premier in Los Angeles on October 17, 2024.
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