“Gratitude Day is a way to honor the collaboration of HD families with clinicians and scientists, which started with the efforts to identify the Huntington’s disease gene in the 1980s, and that continues to these days through various efforts around the world to find treatments for the disease”
March 23rd is the day when the original publication describing the mutation that causes HD was first reported, marking a historical day for science and for all the affected families. This publication culminated a two decade project to identify the cause of the disease. Many families contributed towards this milestone, but it was the contribution of thousands of Venezuelans who enabled scientists to reach their goal – everything changed after this discovery.
Today, therapeutic programs targeting the Huntingtin gene are in clinical stages and are showing signs of positive effects.
Please join us to mark Gratitude Day around the world and to honor the many people who partnered with the research community to advance our quest for effective treatments!
You can post your support images using the hashtag #HDGratitudeDay
This year’s proceeds will support our educational programs for youth – including workshops for teenagers & basic education for children at-risk for HD
2025 Gratitude Day activities
March 18 – Kids Lab Day – a meeting with Christian Neri’s laboratory in France
March 19 – Candle Light Vigil in Barranquitas, honoring those who have passed
March 20 – Pediatric Medical Day in San Luis
March 21 – Candle Light Vigil in San Luis; an HD photography exhibit from Vladimir Marcano
March 23 – Live streaming activities from San Luis, Maracaibo, Venezuela
Join us on March 23rd on the live streaming from Venezuela!
Do you want to know what life is like for families affected by HD in Venezuela?
Do you want to know what Factor-H does to help these families?
Meet the patients, caregivers, and the kids Factor-H supports, and also our team there….
To join the Zoom click on hand image on the left
Access Code: 230325
Webinar-ID: 842 1059 0895
click here for Phone Dial
World times below!
Zulia, Venezuela: 12:00 PM (UTC-4)
Los Angeles, USA: 9:00 AM (UTC-7) – Daylight Saving Time
Mexico City, Mexico: 11:00 AM (UTC-5) – Daylight Saving Time
New York, USA: 12:00 PM (UTC-4) – Daylight Saving Time
São Paulo, Brazil: 1:00 PM (UTC-3)
London, UK: 4:00 PM (UTC+0)
Berlin, Germany: 5:00 PM (UTC+1)
Mumbai, India: 9:30 PM (UTC+5:30)
Hong Kong, China: 12:00 AM the next day (UTC+8)
Tokyo, Japan: 1:00 AM the next day (UTC+9)
Sydney, Australia: 3:00 AM the next day (UTC+11)
We hope to see you there!
See video messages from Drs. Leslie Thompson, Gill Bates and Alice Wexler about their experience visiting the HD families in Venezuela
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