Factor-H President is interviewed for the Rare Disease Advisor

On November 5th, Larry Luxner, journalist and senior correspondent for the Rare Disease Advisor network, interviewed Dr. Ignacio Muñoz-Sanjuan about Factor-H work in Latin America. Larry also spoke with Marina Kauffman who leads Factor-H work in Venezuela.

In the accompanying podcast, Ignacio shares his journey from 2012 when he launched the project Factor-H after visiting the HD communities in Colombia and Venezuela. If you want to know the range of Factor-H programs to help Latin American HD families living in poverty, this is a good place to start.

Larry is a caring and thoughtful journalist and asked a lot of important questions. We thank him and the Rare Disease Advisor network for giving us an opportunity to tell our story.

You can read Larry’s interview with Ignacio and Marina HERE, and listen to the accompanying podcast in the article (listen to the podcast HERE ).

Enjoy!