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Factor-H hosts the US Premiere of two HD documentary films

On November 07, 2024, Factor-H will host a fundraising event in Los Angeles to support our ongoing programs in Latin America.

Factor-H is proud to present the US premiere for two documentary films about Huntington’s disease – The Light (The story of the Informal Caregivers for Huntington’s patients in Barranquitas, Venezuela, by Gindel Delgado) and The Present (Dimitri Poffe’s incredible bicycle trip through Latin America to raise awareness about HD, by Timothy Dhalleine).

Ignacio Muñoz-Sanjuán, president of Factor-H, will host Dr. Roger Cachope and Marina González de Kauffman from Venezuela in an evening of solidarity and cinema.

Following a brief introduction to Factor-H and the state of the HD therapeutics, we will show the two short documentary films, followed by a Q&A and a social mixer. We will also host an art exhibit with photographs by Venezuelan artist Vladimir Marcano.

The event will take place at The Writer’s Guild Theatre in Beverly Hills from 6-10pm

Address: 135 S Doheny Dr, Beverly Hills, CA 90211.

Please note this is a change in venue location!

You can get tickets via Eventbrite below.

 

O Light is a documentary film by Caracas-based filmmaker and journalist Gindel Delgado, who has been an active collaborator of Factor-H since 2017, when he assisted during he filming of the documentary Dancing at the Vatican. Ignacio and Gindel formed a close friendship during this time. Gindel has since become an essential member of the Factor-H team.

In The Light, Gindel tells the story of two informal caregivers’ in Barranquitas, Venezuela, the community with the highest incidence of Huntington’s disease in the world.

Emotional, poignant, raw and full of hope in the power of human relationships, this documentary captures the daily lives of two family members as they struggle to care for their affected relatives and neighbours.

Timothy Dhalleine captures the immense beauty and solitude of the Latin American landscape in The Present, a film about the extraordinary journey of Dimitri Poffé, who changes his life after being tested positive for Huntington’s disease.

Dimitri decided to give up his job in Paris and bicycle from Mexico to the Southern-most region of Argentina, an 18-month, 12,000 mile journey. During the trip, Dimitri visits HD families, scientists and patient associations throughout the continent.

Breathtaking beauty that brings home the message: ‘live in the present’, and ‘no regrets’.

Dimitri is a friend of Factor-H and met the Factor-H Colombia team along his journey.

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