The hidden work of Factor-H - the story of Nelson

The hidden work of Factor-H - the story of Nelson

Nelson Echeverría is 49 years old and he is one of the HD individuals we assist. He is a wonderful person and always receives our social workers with a big smile. He lives in the outskirts of the town of Saco in the Atlántico department in Northern Colombia. He lives…
32 volunteers working back in Barranquitas!

32 volunteers working back in Barranquitas!

On Saturday May 21, 52 volunteers from Factor-H where in Maracaibo, Venezuela, giving medical assistant to kids and patients with Huntington Disease.
Diário de um Dr. de Maracaibo, em Barcelona / Diario de un Dr. de Maracaibo en Barcelona (II)

Diário de um Dr. de Maracaibo, em Barcelona / Diario de un Dr. de Maracaibo en Barcelona (II)

Getting acquinted with Barcelona. / Conociendo y adaptándome a Barcelona. To be in Barcelona is to be in a multicultural city. After the restrictions with Covid-19, little by little the city has opened its doors to thousands of tourists who visit it every day and, therefore, I have been able…
Diário de um Dr. de Maracaibo, em Barcelona / Diario de un Dr. de Maracaibo en Barcelona (I)

Diário de um Dr. de Maracaibo, em Barcelona / Diario de un Dr. de Maracaibo en Barcelona (I)

Dr. Rey Varela is a recipient of an EHDN fellowship and the first physician to receive training in HD centers in Barcelona as part of the LA PEP program. Dr. Varela is a psychiatrist from Maracaibo, and a staff member of Factor-H who has been caring for the patients of…
O LA PEP Programa: o primeiro destinatário de Maracaibo inicia formação em Barcelona

O LA PEP Programa: o primeiro destinatário de Maracaibo inicia formação em Barcelona

The LA PEP program (Latin American Professional Exchange Program) got started a week ago! This program aims to identify aspiring young health professionals working in the HD communities we serve, and facilitate fellowships for them to get training experience at leading HD institutions and hospitals in Spain, Colombia, and Chile.…
Programa De Assistência Médica

Programa De Assistência Médica

Improving access to healthcare has been at the core of Factor-H’s mission since its inception, knowing that health systems are usually under-prepared to optimally serve the rare diseases, and the situation in which HD families live in many regions of Latin-America makes the situation even more complex. The strategic planning…
The Latin American Professional Exchange Program (LA PEP)

The Latin American Professional Exchange Program (LA PEP)

The LA PEP program’s main objective is to provide educational opportunities to health professionals that work in Latin American enclaves with a high incidence of Huntington’s disease. Health & Disease Management is one of the main areas of focus of Factor-H and one of the main programs is what we call LA…
An evidence-based clinical consensus for Latin America

An evidence-based clinical consensus for Latin America

Objectives of the Clinical Practice Guidelines for the Management of Huntington’s Disease in Latin America In 2020, Factor-h obtained a grant from Roche for a project to generate an evidence-based clinical consensus for Latin America countries. The general objective of this consensus is to approach the health problems and improve the…
Caregivers Training Program (In person and App)

Caregivers Training Program (In person and App)

Factor-H has established formal collaborations with the University of Antioquia and the University of Medellín in Medellín (State of Antioquia), and the University Metropolitana (Barranquilla, State of Atlántico) to assist caregivers and the patients we directly support in Colombia (currently >130 families). Our employees work only in defined regions of…
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