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We did it! Factor-H opens neurology consultation clinic for patients from San Luis, Venezuela

We did it! Factor-H opens neurology consultation clinic for patients from San Luis, Venezuela

It is a reality that our patients with HD in Venezuela are subsisting in an environment of great precariousness, not only due to their economic limitations but also because specialized health care is inaccessible in Venezuela, since the national public system does not operate properly. Understanding this harsh reality is…
2022HDLatam Conferences Day 2-C5: Marina González de Kaufman

2022HDLatam Conferences Day 2-C5: Marina González de Kaufman

From October 19 to 21, Factor-h organized in Barranquilla, Colombia, the 2022 Huntington Latin American Conference with the presence of 35 speakers, among them scientists, researchers, experts in different health fields, HD associations, patients, and families. In her conference on October 20th, architect Marina González de Kaufman, President of Fundación…
Venezuela: 2022 Holidays

Venezuela: 2022 Holidays

Today, Monday December 26, 2022, was a beautiful day in San Luis, in Maracaibo. Everything started early today … the work of shopping for the Christmas events, packing, and ordering everything to get it organized for all the children we sponsor. Then, we packed our truck, filled to the brim…
32 volunteers working back in Barranquitas!

32 volunteers working back in Barranquitas!

On Saturday May 21, 52 volunteers from Factor-H where in Maracaibo, Venezuela, giving medical assistant to kids and patients with Huntington Disease.
In Solidarity and Gratitude

In Solidarity and Gratitude

Helping in the time of COVID-19 We all know that the most vulnerable sectors of any society are always the worst hit in times of crisis. The arrival of the novel coronavirus has isolated our communities even further. The most vulnerable sectors of any society are always the worst-hot in times of…
Factor-H and Fundación Habitat LUZ from Maracaibo start working together

Factor-H and Fundación Habitat LUZ from Maracaibo start working together

MEETING BETWEEN THE MARACAIBO PATIENT ASSOCIATIONS, FACTOR-H AND FUNDACION HABITAT LUZ … THE BEGINNING OF OUR EFFORTS TO BRING CHANGE TO THE COMMUNITIES MOST AFFECTED BY HD IN THE WORLDHappy New Year 2018!On Monday December 11th, we held an all-day meeting in the offices of Fundacion Habitat Luz, a Maracaibo,…

BRINGING MEDICAL SUPPORT TO HD CLUSTERS IN VENEZUELA

During the last couple of months, we have managed to reach a lot of patients in both San Luis and Barranquitas, the two largest communities with HD in the world. We conducted two medical assistance visits with the local HD foundations and the medical foundation Primero Auxilios. This is really…

Barrio San Luis, Maracaibo

Barrio San Luis is a neighborhood in Maracaibo, Zulia. Of approximately 3100 people living here, 700 are at risk (23%). The prevalence is estimated to be extremely high, perhaps reaching 10% of all people living in this small and confined area near the city of Maracaibo. During our February/March 2013…
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