Team work and scientific education Every year, Factor-H Vice President Roger Cachope and I visit the Colombian & Venezuelan communities at least once, and over time we have developed a close relationship with many of the HD families we support. These visits are particularly important for me, because they allow…

It is a reality that our patients with HD in Venezuela are subsisting in an environment of great precariousness, not only due to their economic limitations but also because specialized health care is inaccessible in Venezuela, since the national public system does not operate properly. Understanding this harsh reality is…

Alex Fisher is an occupational therapist specialized in caring for HD patients from the UK; she works actively with various working groups as part of EHDN, the European HD Network. She visited for the first time the HD communities in Venezuela, together with the Factor-H team, in September 2023. Alex…

Dilia was born in San Martin of Loba, a municipality located north of the department of Cesar, Colombia. Her parents were Florentino and Ernestina. She met her husband, Valentin, who was also her cousin, at a dance when she was young, and they felt immediately in love. They had twelve…

Hace unos días hubo una emergencia en Colombia. Desde España oigo como Nacho me cuenta desde Los Ángeles que acababan de estar “apagando un fuego”. Su nombre es Nelson, y es querido. Ha tenido una recaída. Es como si una pequeña red invisible e infinita nos uniera a todos. No…

Nelson Echeverría is 49 years old and he is one of the HD individuals we assist. He is a wonderful person and always receives our social workers with a big smile. He lives in the outskirts of the town of Saco in the Atlántico department in Northern Colombia. He lives…

Factor-H continues to deliver on its promises. We try to provide opportunities for families affected by HD. Sometimes, their needs require home improvement projects – they simply need nothing more than a better home to care for their family members. Slowly, one by one, Factor-H is raising the funds necessary…

We are very fortunate at Factor-H to count on the friendship and talent of amazing individuals working in the visual arts. Over the years, documenting the lives of people with Huntington’s disease in their communities has been essential to our mission – if we can’t capture the humanity behind the…

Our New Horizons program continues to evolve. Through a house-by-house survey we conducted in 2021, we have identified many more kids at-risk for HD living in very difficult conditions. This video clearly displays the environmental context in which many of the kids enrolled in the program since 2015 live, many…

BRIEF BIOGRAPHY Charlie Cordero is a 31-year-old documentary photographer based in Colombia. He has studied Photojournalism at the ERAM audiovisual and multimedia school (University of Girona) in Girona, Spain and a Masters in Editorial Photography and Photojournalism at the TAI School of Arts and Entertainment (Rey Juan Carlos University) in…