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Reflections on a visit to Zulia

Reflections on a visit to Zulia

Team work and scientific education Every year, Factor-H Vice President Roger Cachope and I visit the Colombian & Venezuelan communities at least once, and over time we have developed a close relationship with many of the HD families we support. These visits are particularly important for me, because they allow…
We did it! Factor-H opens neurology consultation clinic for patients from San Luis, Venezuela

We did it! Factor-H opens neurology consultation clinic for patients from San Luis, Venezuela

It is a reality that our patients with HD in Venezuela are subsisting in an environment of great precariousness, not only due to their economic limitations but also because specialized health care is inaccessible in Venezuela, since the national public system does not operate properly. Understanding this harsh reality is…
Alex Fisher reflects on her trip to visit the Venezuelan HD communities

Alex Fisher reflects on her trip to visit the Venezuelan HD communities

Alex Fisher is an occupational therapist specialized in caring for HD patients from the UK; she works actively with various working groups as part of EHDN, the European HD Network. She visited for the first time the HD communities in Venezuela, together with the Factor-H team, in September 2023. Alex…
In Memoriam, Dilia Oviedo

In Memoriam, Dilia Oviedo

Dilia was born in San Martin of Loba, a municipality located north of the department of Cesar, Colombia. Her parents were Florentino and Ernestina. She met her husband, Valentin, who was also her cousin, at a dance when she was young, and they felt immediately in love. They had twelve…
Trabajar para Factor-H: la dignidad que nos cura

Trabajar para Factor-H: la dignidad que nos cura

Hace unos días hubo una emergencia en Colombia. Desde España oigo como Nacho me cuenta desde Los Ángeles que acababan de estar “apagando un fuego”. Su nombre es Nelson, y es querido. Ha tenido una recaída. Es como si una pequeña red invisible e infinita nos uniera a todos. No…
The hidden work of Factor-H - the story of Nelson

The hidden work of Factor-H - the story of Nelson

Nelson Echeverría is 49 years old and he is one of the HD individuals we assist. He is a wonderful person and always receives our social workers with a big smile. He lives in the outskirts of the town of Saco in the Atlántico department in Northern Colombia. He lives…
Colombian HD families housing improvement project

Colombian HD families housing improvement project

Factor-H continues to deliver on its promises. We try to provide opportunities for families affected by HD. Sometimes, their needs require home improvement projects – they simply need nothing more than a better home to care for their family members. Slowly, one by one, Factor-H is raising the funds necessary…
Some pictures to end the year and welcome a new one

Some pictures to end the year and welcome a new one

We are very fortunate at Factor-H to count on the friendship and talent of amazing individuals working in the visual arts. Over the years, documenting the lives of people with Huntington’s disease in their communities has been essential to our mission – if we can’t capture the humanity behind the…
New video of the kids program in Colombia

New video of the kids program in Colombia

Our New Horizons program continues to evolve. Through a house-by-house survey we conducted in 2021, we have identified many more kids at-risk for HD living in very difficult conditions. This video clearly displays the environmental context in which many of the kids enrolled in the program since 2015 live, many…
What is Factor-H?

What is Factor-H?

A non-for-profit humanitarian project to increase the awareness of people living with and affected by Huntington’s disease, to facilitate social aid to diminish the suffering of local communities in Latin America. An effort to unite socially minded individuals through creative artistic, journalistic, medical, scientific, and political means to change the…
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