What is Factor-H?

What is Factor-H?

A non-for-profit humanitarian project to increase the awareness of people living with and affected by Huntington’s disease, to facilitate social aid to diminish the suffering of local communities in Latin America. An effort to unite socially minded individuals through creative artistic, journalistic, medical, scientific, and political means to change the…
A collection of short stories about HD affected individuals from Colombia

A collection of short stories about HD affected individuals from Colombia

A BOOK OF SHORT STORIES BY TATIANA HINOJOSA FROM VALLEDUPAR Tatiana Hinojosa is a well-known writer and teacher from Valledupar, Colombia. Tatiana went to grammar school with Leyla Mieles, an associate of Factor-H in Colombia, who introduced our mission to Tatiana, who quickly became aware of the need to increase…
Art 4 HD - collaboration with illustrator Matt Rota

Art 4 HD - collaboration with illustrator Matt Rota

Matt Rota is an illustrator who has recently become associated with our kids’ program at Factor-H. Below are some of the illustrations he created recently for some poems I wrote about the kids to commemorate the completion of the 5th year of the program in Colombia. What began as an…
Meet Brayan - the video

Meet Brayan - the video

<br /> A few months ago I wrote a story about meeting Brayan, a young kid at risk for HD from Barranquitas, Venezuela (see blog post “Reflections on instilling a sense of hope”). Together with colleagues Matt Rota (https://www.mattrotasart.com) and Nicanor Cardeñosa, we put together a narrated illustrated story of…
Reflections on instilling a sense of hope

Reflections on instilling a sense of hope

What is the difference between having no hope and having hope? Meet Brayan, a 13-year old boy I met when visiting the town of Barranquitas, in Venezuela, in December 2018, the last time I was able to visit. This town is a forsaken, isolated village where in every corner one…
Thank you from families who visited Pope Francis in 2017. Let's not forget them.

Thank you from families who visited Pope Francis in 2017. Let's not forget them.

A message from Maria and Anyervi Gotera from Venezuela A message from Dilia Oviedo from El Dificil, Colombia
Factor-H and Fundación Habitat LUZ from Maracaibo start working together

Factor-H and Fundación Habitat LUZ from Maracaibo start working together

MEETING BETWEEN THE MARACAIBO PATIENT ASSOCIATIONS, FACTOR-H AND FUNDACION HABITAT LUZ … THE BEGINNING OF OUR EFFORTS TO BRING CHANGE TO THE COMMUNITIES MOST AFFECTED BY HD IN THE WORLDHappy New Year 2018!On Monday December 11th, we held an all-day meeting in the offices of Fundacion Habitat Luz, a Maracaibo,…
Factor-H visits the Peruvian HD families in Cañete

Factor-H visits the Peruvian HD families in Cañete

For the first time, Sonia Moreno, a neuropsychologist from Universidad de Antioquia, an a member of Factor-H team in Colombia, and Nacho visited the families living with Huntington’s disease in Perú. Cañete is a province adjacent to the capital of Perú, Lima. The first HD reports in the Cañete Valley…
Manuel

Manuel

The image above has become symbolic for me. During my second visit to San Angel, a rural area in the State of Magdalena in Colombia, I visited a few families dispersed in the countryside, isolated from the rest of the world, a countryside that hides many patients away from aid,…

Olver

A life gone too soon Last week we lost a friend and a very special person. A life story that would have remained untold. He is one of the forgotten children of the world, a life made difficult by poverty, by Huntington’s disease, and by social neglect. His story, now…