The hidden work of Factor-H - the story of Nelson

The hidden work of Factor-H - the story of Nelson

Nelson Echeverría is 49 years old and he is one of the HD individuals we assist. He is a wonderful person and always receives our social workers with a big smile. He lives in the outskirts of the town of Saco in the Atlántico department in Northern Colombia. He lives…
Proyecto de mejora de viviendas de familias colombianas con la EH

Proyecto de mejora de viviendas de familias colombianas con la EH

Factor-H continues to deliver on its promises. We try to provide opportunities for families affected by HD. Sometimes, their needs require home improvement projects – they simply need nothing more than a better home to care for their family members. Slowly, one by one, Factor-H is raising the funds necessary…
Algunas fotos para finalizar el año y dar la bienvenida a un nuevo

Algunas fotos para finalizar el año y dar la bienvenida a un nuevo

We are very fortunate at Factor-H to count on the friendship and talent of amazing individuals working in the visual arts. Over the years, documenting the lives of people with Huntington’s disease in their communities has been essential to our mission – if we can’t capture the humanity behind the…
Nuevo video del programa de niños en Colombia

Nuevo video del programa de niños en Colombia

Our New Horizons program continues to evolve. Through a house-by-house survey we conducted in 2021, we have identified many more kids at-risk for HD living in very difficult conditions. This video clearly displays the environmental context in which many of the kids enrolled in the program since 2015 live, many…
What is Factor-H?

What is Factor-H?

A non-for-profit humanitarian project to increase the awareness of people living with and affected by Huntington’s disease, to facilitate social aid to diminish the suffering of local communities in Latin America. An effort to unite socially minded individuals through creative artistic, journalistic, medical, scientific, and political means to change the…
A collection of short stories about HD affected individuals from Colombia

A collection of short stories about HD affected individuals from Colombia

A BOOK OF SHORT STORIES BY TATIANA HINOJOSA FROM VALLEDUPAR Tatiana Hinojosa is a well-known writer and teacher from Valledupar, Colombia. Tatiana went to grammar school with Leyla Mieles, an associate of Factor-H in Colombia, who introduced our mission to Tatiana, who quickly became aware of the need to increase…
Art 4 HD - collaboration with illustrator Matt Rota

Art 4 HD - collaboration with illustrator Matt Rota

Matt Rota is an illustrator who has recently become associated with our kids’ program at Factor-H. Below are some of the illustrations he created recently for some poems I wrote about the kids to commemorate the completion of the 5th year of the program in Colombia. What began as an…
Meet Brayan - the video

Meet Brayan - the video

<br /> A few months ago I wrote a story about meeting Brayan, a young kid at risk for HD from Barranquitas, Venezuela (see blog post “Reflections on instilling a sense of hope”). Together with colleagues Matt Rota (https://www.mattrotasart.com) and Nicanor Cardeñosa, we put together a narrated illustrated story of…
Reflections on instilling a sense of hope

Reflections on instilling a sense of hope

What is the difference between having no hope and having hope? Meet Brayan, a 13-year old boy I met when visiting the town of Barranquitas, in Venezuela, in December 2018, the last time I was able to visit. This town is a forsaken, isolated village where in every corner one…
Thank you from families who visited Pope Francis in 2017. Let's not forget them.

Thank you from families who visited Pope Francis in 2017. Let's not forget them.

A message from Maria and Anyervi Gotera from Venezuela A message from Dilia Oviedo from El Dificil, Colombia
es_ESSpanish