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Gratitude Day - Video interviews from Spain

Gratitude Day - Video interviews from Spain

Ruth Blanco, president of the HD association in Spain & coordination of the European Huntington’s (EHA) program ‘Moving Forward‘ for Spain, conducted a series of interviews to support Factor-H Gratitude Day campaign. Ruth interviewed several scientists and family advocates from Europe, the USA and Venezuela, including Ignacio Muñoz-Sanjuán, to discuss…
GRATITUDE DAY 2023

GRATITUDE DAY 2023

Gratitude Day 2023 was a success! The gratitude day campaign was adopted by many families, patient associations, friends of HD families, clinicians and scientists working on behalf of HD families. Below you can see a video of all the social media posts from these special and caring individuals who joined…
Gratitude Day: Celebrating the 30th anniversary of the discovery of the huntingtin gene

Gratitude Day: Celebrating the 30th anniversary of the discovery of the huntingtin gene

Hit the logo and you will be taked with a live page with posts. 30 years ago, on March 23, a landmark Cell article was published, describing that the mutation in the gene responsible for Huntington’s disease had been identified for the first time. This discovery was possible thanks to…
2022HDLatam Conferences Day 2-C5: Marina González de Kaufman

2022HDLatam Conferences Day 2-C5: Marina González de Kaufman

From October 19 to 21, Factor-h organized in Barranquilla, Colombia, the 2022 Huntington Latin American Conference with the presence of 35 speakers, among them scientists, researchers, experts in different health fields, HD associations, patients, and families. In her conference on October 20th, architect Marina González de Kaufman, President of Fundación…
2022HDLatam Conferences Day 2-C4: Vladimir Marcano

2022HDLatam Conferences Day 2-C4: Vladimir Marcano

(Conference below) From October 19 to 21, Factor-h organized in Barranquilla, Colombia, the 2022 Huntington Latin American Conference with the presence of 35 speakers, among them scientists, researchers, experts in different health fields, HD associations, patients, and families. In his conference on October 20h, Vladimir Marcano, a Venezuelan documentary photographer…
Factor-H featured in the Moving Along magazine of the Movement Disorder Society

Factor-H featured in the Moving Along magazine of the Movement Disorder Society

The work Factor-H implements in Latin America is being recognized by the Movement Disorder Society, the main neurology association that deals with all aspects clinical and scientific with movement disorders. In their February 2023 issue of their magazine, Moving Along, Factor-H 2022 HD conference was highlighted. PLease take a look…
2022HDLatam Conferences Day 1-C3: Selene Capodarca - Global Project Manager for Enroll-HD

2022HDLatam Conferences Day 1-C3: Selene Capodarca - Global Project Manager for Enroll-HD

From October 19 to 21, Factor-h organized in Barranquilla, Colombia, the 2022 Huntington Latin American Conference with the presence of 35 speakers, among them scientists, researchers, experts in different health fields, HD associations, patients, and families. In her conference on the 19th, Selene Capodarca, an associate of Factor-H and the Enroll-HD Global…
2022 Latin American HD Conference testimonials: Juan Carlos Angulo Calderón

2022 Latin American HD Conference testimonials: Juan Carlos Angulo Calderón

My name is Juan Carlos Angulo Calderón, I live in Costa Rica, I am 32 years old, and I am the son of a patient with Huntington’s disease in the advanced stage of the process currently, my maternal grandmother died 24 years ago due to this diagnosis. Nurse by profession,…
2022 Latin American HD Conference:  A closing video full of smiles

2022 Latin American HD Conference: A closing video full of smiles

Gindel Delgado created a moving video for the closing of the 2022 HD Congres in Latin America, when kids from some of the affected areas in the continent give their smiles looking into the future. Many of the speakers at the Congres joined in.
2022HDLatam Conferences Day 1-C2: Dr. Claudia Perandones

2022HDLatam Conferences Day 1-C2: Dr. Claudia Perandones

From October 19 to 21, Factor-h organized in Barranquilla, Colombia, the 2022 Huntington Latin American Conference with the presence of 35 speakers, among them scientists, researchers, experts in different health fields, HD associations, patients, and families. In her conference on the 19th, Factor-h’s co-founder Dra. Claudia Perandones, spoke about the “Relevance of…
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