December 2025 marked another meaningful journey to Colombia for our annual Christmas celebrations with families affected by Huntington’s disease. Each year, across Peru, Colombia, and Venezuela, our local teams gather children at risk for Huntington’s disease together with their families—not simply for a holiday event, but to affirm community, dignity,…

Factor-H tiene como prioridad compartir información sobre la investigación clínica de una manera responsable, sin generar expectativas irreales ni aumentar la carga emocional de las familias afectadas por la enfermedad de Huntington. El estudio Falcon-HD está evaluando SKY-0515, un fármaco experimental de administración oral desarrollado por Skyhawk Therapeutics para modular…

A central priority for Factor-H is ensuring that information about clinical research is shared in a way that does not create unrealistic expectations or add to the emotional burden faced by individuals and families affected by Huntington’s disease. While scientific progress is essential and provides reasons for optimism, it is…

On January 3rd, 2026, at 7 am (UK time), my “Hermanito” Gindel rang me. ‘They’re bombing Caracas’ he said, ‘don’t worry, I love you, I’m safe’, ‘I’ll call you later’. A call like that leaves you in a state of anxiety. Fear of the unknown. And I’m not living there.…

Dr. Ignacio Muñoz-Sanjuan, Factor-H president, shares in this article his first insights on the Skyhawk’s Therapeutics announcement from January 28. There are always two sides with any important development regarding possible treatments for a devastating condition like Huntington’s Disease: one is the scientific part of it; the other is how…

From top to bottom, the reality of neurological care for people with Huntington’s Disease in Venezuela and the delivery of therapeutic advancement A story by Alex Fisher “……as the heat is turned up on HD science and the current US administration have also turned up the heat in the region,…

A story by Alex Fisher “In the small space that we have built so much on, it’s not just their genes but their everyday which is a moral laboratory, and the girl at the end of the world should remind us of that.” Alex Fisher is an occupational therapist who…

During the third quarter of 2025, Factor-H, in partnership with Hábitat Luz, expanded its impact in the communities of San Luis and Barranquitas, reaching a total of 2,045 people, including individuals with Huntington’s disease (HD), their families, and children from the Abrazos Program.

At first, going to Barranquitas felt like stepping into the world of Mad Max. The heat, the dust, the precariousness, the sense that everything could fall apart at any moment. But over time, something shifted. Maybe it was accepting my mission—to help and inspire. Maybe it was realizing that in…

The city of Medellín hosted Cuidarme, Cuidarte, a gathering that brought together social organizations, health institutions, community groups, and families to share experiences and knowledge about care, prevention, and health promotion. This space seeks to strengthen a culture of self-care and mutual care, highlighting the importance of solidarity and collective…