Team work and scientific education Every year, Factor-H Vice President Roger Cachope and I visit the Colombian & Venezuelan communities at least once, and over time we have developed a close relationship with many of the HD families we support. These visits are particularly important for me, because they allow…

Factor-H offers a free-of-charge legal assistance service in Colombia, with the sole objective of facilitating access to the services, medicines and supplies that the Colombian State ensures to all patients affected by Huntington’s disease. Factor-H aims to assist all HD families with navigating the complex landscape of accessing medical benefits…

Health 'on board' for Barranquitas It is exciting to see the joy and willingness with which our volunteers and community service go to the health activities we organize in both Barranquitas and San Luis, which Factor-H and Habitat LUZ organize quarterly to care for the families afflicted with, or at-risk…

Factor-H has been supporting and working alongside the Peruvian association for several years now. The region of the Cañete province constitutes one of the largest clusters of HD in the world. The association is supporting the needs of 49 families afflicted with HD and a total of 80 patients. During…

It is a reality that our patients with HD in Venezuela are subsisting in an environment of great precariousness, not only due to their economic limitations but also because specialized health care is inaccessible in Venezuela, since the national public system does not operate properly. Understanding this harsh reality is…

Alex Fisher is an occupational therapist specialized in caring for HD patients from the UK; she works actively with various working groups as part of EHDN, the European HD Network. She visited for the first time the HD communities in Venezuela, together with the Factor-H team, in September 2023. Alex…

The Health Day, conducted on September 26, 2023, was aimed at children and adolescents belonging to the EH community in Algarrobo in the department of Magdalena, as a collaboration between Factor-H, the University Metropolitana (Barranquilla), University Area Andina (Valledupar), Colegio el Carmen and GREMCAN S.A. (a Colombian occupational heath NGO).…

From September 6-14, 2023, Factor-H visited the HD communities in Barranquitas and San Luis and conducted medical, educational and humanitarian activities with volunteers and affiliated organizations. Below you can see a video summarizing the trip and a detailed diary of our visit.Text by Marina Gonzalez de Kauffman & Ignacio Muñoz-SanjuánVideo…

On April 10, 2023, the President of Factor-H, Ignacio Muñoz-Sanjuan, and members of the management team in Colombia, met with Carlos Manuel Higgins Villanueva, mayor of Juan de Acosta, to discuss the management of a municipal space by Factor-H, which aims to serve as an operations center for the services…

From October 19 to 21, Factor-h organized in Barranquilla, Colombia, the 2022 Huntington Latin American Conference with the presence of 35 speakers, among them scientists, researchers, experts in different health fields, HD associations, patients, and families. In her conference on October 20th, architect Marina González de Kaufman, President of Fundación…