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The girl at the end of the world

January 17, 2026 No Comments

A story by Alex Fisher “In the small space that we have built so much on, it’s not just their genes but their everyday which

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Alex Fisher and a patient share an embrace.

Factor-H will join Giving Tuesday on December 2 as one of our major donation days

November 29, 2025 No Comments

GivingTuesday is a global generosity movement unleashing the power of radical generosity. This December 3, Factor-H will take part in Giving Tuesday (#GivingTuesday), a global

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Image with Thanksgiving items and a smiling kid

Happy Thanksgiving day!!! From Factor-H

November 27, 2025 No Comments

Today, we want to take a moment to say thank you to our entire community — donors, volunteers, partners, families, and friends who support our

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Today, November 13th, is World Huntington’s Disease DayToday, November 13th, is World Huntington’s Disease Day

Today, November 13th, is World Huntington’s Disease Day

November 13, 2025 No Comments

In Latin America, thousands of families live with the impact of Huntington’s disease — an inherited, devastating condition that affects both mind and body. In

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Factor-H team visiting a person affected by Huntington’s disease

Hope in Numbers: More than 2,000 people from the Huntington’s community in Venezuela benefited from Factor-H programs during the third quarter of 2025

October 16, 2025 No Comments

During the third quarter of 2025, Factor-H, in partnership with Hábitat Luz, expanded its impact in the communities of San Luis and Barranquitas, reaching a total of 2,045 people, including individuals with Huntington’s disease (HD), their families, and children from the Abrazos Program.

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"La veda" is the period of time when fishing is forbidden.

To the Rhythm of the veda – Al ritmo de la veda

October 13, 2025 No Comments

At first, going to Barranquitas felt like stepping into the world of Mad Max. The heat, the dust, the precariousness, the sense that everything could

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OTHERS HD LINKS

HDYO     http://hdyo.org
EHDN     http://www.ehdn.org
HDBuzz (eng) https://en.hdbuzz.net
HDBuzz (esp) https://es.hdbuzz.net
CETRAM (Chile) https://cetram.org/
International Huntington Association (IHA) https://huntington-disease.org/
Asociacion EH Peru https://huntingtonperu.oits.pe/index.php
Asociación Corea Huntington de España http://www.e-huntington.es/
Fundacion colombiana de enfermedades raras (FECOER) https://www.fecoer.org/

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