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Dra. Sonia Moreno con una voluntaria.

Factor-H at Cuidarme, Cuidarte in Medellín

October 2, 2025 No Comments

The city of Medellín hosted Cuidarme, Cuidarte, a gathering that brought together social organizations, health institutions, community groups, and families to share experiences and knowledge

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Interview with Ignacio Muñoz-Sanjuán – Reflections on UniQure’s AMT-130 study

September 29, 2025 2 Comments

Explanation in Spanish of the meaning of UniQure’s new AMT-130 therapy, with clarifications on the what and the when, by Dr. Ignacio Muñoz-Sanjuán (based on the most recent study published on September 24, 2025)

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AMT-130 Marks a Historic Moment for Huntington’s—Now Comes Careful Communication

September 28, 2025 8 Comments

On July 10, 2024, I wrote a reflection piece following the investor conference where uniQure presented the encouraging 24-month results of AMT-130, the first HTT-directed

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Image of the BBC page announcing treatment for Huntington’s disease

Ignacio Muñoz-Sanjuan: “We may see a Huntington’s therapy approved in 2026. It is a day for hope: while the therapy will at first be limited, access will increase in the years ahead”

September 24, 2025 No Comments

24/09/2025 Ignacio Muñoz-Sanjuan, neuroscientist and founder of the non-profit Factor-H, has expressed optimism that an experimental gene therapy for Huntington’s disease, developed by uniQure and

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Medical Outreach in San Luis July 2025

Medical Outreach in San Luis: Over 100 Beneficiaries

August 29, 2025 No Comments

On July 19, Factor H hosted a Medical Outreach event in San Luis, Venezuela, for people living with Huntington’s disease and those at risk of

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Una nueva casa para una vida mejor.

A New Beginning Amid Adversity: Johana’s Journey Facing Huntington’s Disease

August 8, 2025 No Comments

Eight years ago, Johana Oviedo Barrios, a mother of three and a patient with Huntington’s disease from El Dificil, Magdalena State, Colombia was living in

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