It is a reality that our patients with HD in Venezuela are subsisting in an environment of great precariousness, not only due to their economic limitations but also because specialized health care is inaccessible in Venezuela, since the national public system does not operate properly. Understanding this harsh reality is…

The Health Day, conducted on September 26, 2023, was aimed at children and adolescents belonging to the EH community in Algarrobo in the department of Magdalena, as a collaboration between Factor-H, the University Metropolitana (Barranquilla), University Area Andina (Valledupar), Colegio el Carmen and GREMCAN S.A. (a Colombian occupational heath NGO).…

Improving access to healthcare has been at the core of Factor-H’s mission since its inception, knowing that health systems are usually under-prepared to optimally serve the rare diseases, and the situation in which HD families live in many regions of Latin-America makes the situation even more complex. The strategic planning…