On September 3, 2023, at The Lodge Room in Los Angeles, about 200 people gathered in an evening of solidarity with HD families living in poverty in Latin America, to celebrate the contributions of many of these families to the identification of the HD mutation in the 1980s and 1990s.…
Miner is a folk-rock, family band based in Los Angeles, formed by husband and wife Justin & Kate Miner along with Justin’s brother Jeremy Miner. After self-producing their debut album Into The Morning (2014) in a spare bedroom with a single microphone, singles “Hey Love” and “Carousel” quickly racked up…
Today, Monday December 26, 2022, was a beautiful day in San Luis, in Maracaibo. Everything started early today … the work of shopping for the Christmas events, packing, and ordering everything to get it organized for all the children we sponsor. Then, we packed our truck, filled to the brim…
With over 20,000 views, Dancing at the Vatican documentary has been a success, and we hope this film has inspired people. We remember with fondness the trip to the Vatican and remain thankful for the words and warmth Pope Francis delivered to the HD community. The documentary is subtitled in…
A BOOK OF SHORT STORIES BY TATIANA HINOJOSA FROM VALLEDUPAR Tatiana Hinojosa is a well-known writer and teacher from Valledupar, Colombia. Tatiana went to grammar school with Leyla Mieles, an associate of Factor-H in Colombia, who introduced our mission to Tatiana, who quickly became aware of the need to increase…
by Tatiana Hinojosa Translated by Amanda Kauffman MY HOPE There are some moments where I think that life should be like a fantasy story, where we the children live in beautiful houses and wake up with the smell of spring flowers… When I was four, I was a very judicious…
By Tatiana Hinojosa Translated by Amanda Kauffman DESTINATIONS OF FAITH Greis prayed at night as the porcelain collection that adorned her wooden ledge looked at her family’s footsteps, the parsimony of time helped create the bad habit of fighting over everything and ended up driving her parents away. At that…
by Tatiana Hinojosa Translation by Amanda Kauffman Divine Signs The musical dawn in charge of the municipal band announced the beginning of the festivities of San Martin of Loba, patron of Astrea, a municipality located north of the department of Cesar. The sound of the fliers encouraged the sleeping hearts,…
by Tatiana Hinojosa Translated by Amanda Kauffman In My Dreams – The Story of Celia An imprisoned sigh escapes me at night, even if it looks like a game, it would steal to the chorus of a dark evening many treasures to fill your warm room with fantasies, would play…
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