Gratitude day 2024 brings hope to Venezuela The importance of the contributions of the Venezuelan families to HD research and disease understanding cannot be minimized, even with the passing of time. The journey of these families in advancing our scientific and medical work started in the 1970s, after the presentation…

In the recent EHDN Newsletter, Factor-H work is featured in two articles – the first launches the 2024 Gratitude Day campaign; the second is by Alex Fisher, who tells her story of coming to Venezuela and the work she is conducting together with Factor-H & Habitat LUZ in Maracaibo to…

Today, November 29th is #givingtuesday, please think about people with Huntington in Latin América when giving your donations! Remember, GivingTuesday is a global generosity movement that unleashes the power of radical generosity around the world. Millions of people come together to celebrate generosity, share kindness, and drive record-breaking giving again…

Primero una Web, ahora una nueva forma de comunicar y colaborar… Son algo más de las 7 de la mañana en este pequeño y bellísimo pueblo de la Costa Brava donde vivo. Para quienes hayan oido hablar de él, está en Gerona en España y tiene una pequeña muralla alrededor…

A non-for-profit humanitarian project to increase the awareness of people living with and affected by Huntington’s disease, to facilitate social aid to diminish the suffering of local communities in Latin America. An effort to unite socially minded individuals through creative artistic, journalistic, medical, scientific, and political means to change the…

2020 was a year like no other. The global Covid-19 pandemic impacted the entire world, but it has taken a heavy toll on poor communities around the world. Most of the families we assist live in vulnerable conditions, and their access to employment and medical assistance were significantly impacted.  We reacted…

En las últimas semanas ha habido algunas noticias en la prensa sobre la progresión en fases clínicas de varios agentes potencialmente terapéuticos para tratar la enfermedad de Huntington. Estos avances continúan llamando la atención general y de los especialistas médicos, por el sencillo hecho de que este tipo de terapias…

My first – unexpected – science lecture for medical students in Barranquilla, Colombia Barranquilla is close to Juan de Acosta, the second largest cluster of HD patients in the world (to our knowledge). The prevalence was reported quite a few years ago by Dr. Daza in one of the few…

Viruses and the brain JAN25 2015 I am certain most of you would have heard that some of the therapies being developed for HD and other neurodegenerative indications involve the use of viruses to deliver a gene therapy agent. This is true in the case of HD, we are working…

Dear all- it is with great pride that the project I have named “Factor_H” will launch in Mendoza, Argentina on October 12, 2012. This is an initiative that originated during a visit to Rio de Janeiro when I and CHDI clinical started officially the Latin American Network of clinicians and…