Search
Close this search box.
Factor-H is Awarded the 2024 Amgen Prize!

Factor-H is Awarded the 2024 Amgen Prize!

Factor-H 'La Luz' Caregivers program wins the 2024 Amgen/MIT Solve award at the Concordia Summit We are extremely honored and humbled by this award, which will fund our caregivers support program in Venezuela. The prize money will be used to fund a caregivers’ training program, support out ongoing psychological and…
Factor-H nominated for the 2024 Amgen Prize

Factor-H nominated for the 2024 Amgen Prize

We are honored to be 1 of 5 finalist nonprofit organizations being nominated for this prestigious award, selected out of 90 applicant organizations. The award of US$150,000 will be given to one of the five finalists.  The Amgen Prize 2024 rewards innovative in rare disease patient care.  Factor-H submitted an…
Uniqure's AMT-130 Phase 1/2 trial - a reflection

Uniqure's AMT-130 Phase 1/2 trial - a reflection

Yesterday, Uniqure reported on the 24-month results of their Phase 1/2 clinical trial with AMT-130, a viral gene therapy trial for HTT lowering for the treatment of HD. See the links to the press release and investor call slides. I wanted to review some aspects of the claims made by Uniqure, and…
Small gestures matter - building Dilia Oviedo a mausoleum for her family

Small gestures matter - building Dilia Oviedo a mausoleum for her family

Dilia Oviedo Güillín, a woman of unwavering spirit and strength, always dreamed of reuniting her deceased husband and children in a place where they could rest in peace together. From an early age, life presented her with numerous challenges, including a disease that would change her life completely, “Huntington’s Disease”,…
Reflections on a visit to Zulia

Reflections on a visit to Zulia

Team work and scientific education Every year, Factor-H Vice President Roger Cachope and I visit the Colombian & Venezuelan communities at least once, and over time we have developed a close relationship with many of the HD families we support. These visits are particularly important for me, because they allow…
Healthcare activities in Venezuela

Healthcare activities in Venezuela

Health 'on board' for Barranquitas It is exciting to see the joy and willingness with which our volunteers and community service go to the health activities we organize in both Barranquitas and San Luis, which Factor-H and Habitat LUZ organize quarterly to care for the families afflicted with, or at-risk…
Factor-H and Familias Huntington Peru association bring assistance to vulnerable Peruvian HD families

Factor-H and Familias Huntington Peru association bring assistance to vulnerable Peruvian HD families

Factor-H has been supporting and working alongside the Peruvian association for several years now. The region of the Cañete province constitutes one of the largest clusters of HD in the world. The association is supporting the needs of 49 families afflicted with HD and a total of 80 patients. During…
Fundación Cinco Palabras supports Factor-H Programs in Venezuela

Fundación Cinco Palabras supports Factor-H Programs in Venezuela

Factor-H coordinates a Social Program in Venezuela for the improvement of the quality of life for individuals and families with Huntington’s disease (HD) in the towns of Barranquitas -Rosario de Perijá Municipality- and the area of the community of San Luis, in the city of Maracaibo, San Francisco Municipality, both…
Donations of school supplies in Colombia - Kids program

Donations of school supplies in Colombia - Kids program

By Arnel Arroyo Díaz We celebrate another milestone in our mission to support the most vulnerable HD communities! We are proud to share that we have once again delivered school kits to families afflicted with Huntington’s disease in more than 10 municipalities on the Colombian Caribbean coast. This effort has…
2024 Gratitude Day - a celebration of community

2024 Gratitude Day - a celebration of community

Gratitude day 2024 brings hope to Venezuela The importance of the contributions of the Venezuelan families to HD research and disease understanding cannot be minimized, even with the passing of time. The journey of these families in advancing our scientific and medical work started in the 1970s, after the presentation…
EN