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HD in the News: EHDN March Newsletter

HD in the News: EHDN March Newsletter

In the recent EHDN Newsletter, Factor-H work is featured in two articles – the first launches the 2024 Gratitude Day campaign; the second is by Alex Fisher, who tells her story of coming to Venezuela and the work she is conducting together with Factor-H & Habitat LUZ in Maracaibo to…
Gratitude Day: Celebrating the Anniversary of the Discovery of the Huntingtin Gene

Gratitude Day: Celebrating the Anniversary of the Discovery of the Huntingtin Gene

Gratitude Day Donations! See a summary video of Factor-H and collaborators programs in Venezuela in 2023 On March 23, 1993, a landmark Cell article was published, describing that the mutation in the gene responsible for Huntington’s disease had been identified for the first time. This discovery was possible thanks to…
We did it! Factor-H opens neurology consultation clinic for patients from San Luis, Venezuela

We did it! Factor-H opens neurology consultation clinic for patients from San Luis, Venezuela

It is a reality that our patients with HD in Venezuela are subsisting in an environment of great precariousness, not only due to their economic limitations but also because specialized health care is inaccessible in Venezuela, since the national public system does not operate properly. Understanding this harsh reality is…
Alex Fisher reflects on her trip to visit the Venezuelan HD communities

Alex Fisher reflects on her trip to visit the Venezuelan HD communities

Alex Fisher is an occupational therapist specialized in caring for HD patients from the UK; she works actively with various working groups as part of EHDN, the European HD Network. She visited for the first time the HD communities in Venezuela, together with the Factor-H team, in September 2023. Alex…
Health campaign to support the HD community in Algarrobo, Colombia

Health campaign to support the HD community in Algarrobo, Colombia

The Health Day, conducted on September 26, 2023, was aimed at children and adolescents belonging to the EH community in Algarrobo in the department of Magdalena, as a collaboration between Factor-H, the University Metropolitana (Barranquilla), University Area Andina (Valledupar), Colegio el Carmen and GREMCAN S.A. (a Colombian occupational heath NGO).…
Factor-H September 2023 trip to the Maracaibo HD communities​

Factor-H September 2023 trip to the Maracaibo HD communities​

From September 6-14, 2023, Factor-H visited the HD communities in Barranquitas and San Luis and conducted medical, educational and humanitarian activities with volunteers and affiliated organizations. Below you can see a video summarizing the trip and a detailed diary of our visit.Text by Marina Gonzalez de Kauffman & Ignacio Muñoz-SanjuánVideo…
MINER: an evening of gratitude concert for the benefit of HD families living in poverty

MINER: an evening of gratitude concert for the benefit of HD families living in poverty

On September 3, 2023, at The Lodge Room in Los Angeles, about 200 people gathered in an evening of solidarity with HD families living in poverty in Latin America, to celebrate the contributions of many of these families to the identification of the HD mutation in the 1980s and 1990s.…
Arepa Day - 22 nonprofits including Factor-H unite in supporting Venezuelan families

Arepa Day - 22 nonprofits including Factor-H unite in supporting Venezuelan families

22 humanitarian organizations = 1 common purpose: to help families in Venezuela Arepa Day is a campaign aimed at improving access to health and nutritional services for Venezuelan families. Global Giving, the non-profit organization that supports other foundations, has selected 22 US-based non-profit foundations focused on helping Venezuelan causes, to…
Miner Band

Miner Band

Miner is a folk-rock, family band based in Los Angeles, formed by husband and wife Justin & Kate Miner along with Justin’s brother Jeremy Miner. After self-producing their debut album Into The Morning (2014) in a spare bedroom with a single microphone, singles “Hey Love” and “Carousel” quickly racked up…
Dr. Elena Cattaneo details in La Reppublica the cloning of the Huntington's disease gene & the social impact of the disease

Dr. Elena Cattaneo details in La Reppublica the cloning of the Huntington's disease gene & the social impact of the disease

Elena Cattaneo, leading scientist in HD research and a Senator for Life in Italy, has written this piece for the newspaper La Reppublica, detailing the identification of the cloning of the mutation that causes HD. Dr. Cattaneo is a consultant for Factor-H and a dear friend and supporter.  In this…
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