Yesterday, Uniqure reported on the 24-month results of their Phase 1/2 clinical trial with AMT-130, a viral gene therapy trial for HTT lowering for the treatment of HD. See the links to the press release and investor call slides. I wanted to review some aspects of the claims made by Uniqure, and…

Dilia Oviedo Güillín, a woman of unwavering spirit and strength, always dreamed of reuniting her deceased husband and children in a place where they could rest in peace together. From an early age, life presented her with numerous challenges, including a disease that would change her life completely, “Huntington’s Disease”,…

Team work and scientific education Every year, Factor-H Vice President Roger Cachope and I visit the Colombian & Venezuelan communities at least once, and over time we have developed a close relationship with many of the HD families we support. These visits are particularly important for me, because they allow…

Health 'on board' for Barranquitas It is exciting to see the joy and willingness with which our volunteers and community service go to the health activities we organize in both Barranquitas and San Luis, which Factor-H and Habitat LUZ organize quarterly to care for the families afflicted with, or at-risk…

Factor-H has been supporting and working alongside the Peruvian association for several years now. The region of the Cañete province constitutes one of the largest clusters of HD in the world. The association is supporting the needs of 49 families afflicted with HD and a total of 80 patients. During…

Factor-H coordinates a Social Program in Venezuela for the improvement of the quality of life for individuals and families with Huntington’s disease (HD) in the towns of Barranquitas -Rosario de Perijá Municipality- and the area of the community of San Luis, in the city of Maracaibo, San Francisco Municipality, both…

By Arnel Arroyo Díaz We celebrate another milestone in our mission to support the most vulnerable HD communities! We are proud to share that we have once again delivered school kits to families afflicted with Huntington’s disease in more than 10 municipalities on the Colombian Caribbean coast. This effort has…

Gratitude day 2024 brings hope to Venezuela The importance of the contributions of the Venezuelan families to HD research and disease understanding cannot be minimized, even with the passing of time. The journey of these families in advancing our scientific and medical work started in the 1970s, after the presentation…

The week of Gratitude day, 23rd of March, has seen an inclusion of community events inside the HD communities of San Luis and Barranquitas. The celebration of the partnership between scientists and HD families has taken an unexpected turn this year and also became a celebration of the history of…

In the recent EHDN Newsletter, Factor-H work is featured in two articles – the first launches the 2024 Gratitude Day campaign; the second is by Alex Fisher, who tells her story of coming to Venezuela and the work she is conducting together with Factor-H & Habitat LUZ in Maracaibo to…