Gratitude day 2024 brings hope to Venezuela The importance of the contributions of the Venezuelan families to HD research and disease understanding cannot be minimized, even with the passing of time. The journey of these families in advancing our scientific and medical work started in the 1970s, after the presentation…

The week of Gratitude day, 23rd of March, has seen an inclusion of community events inside the HD communities of San Luis and Barranquitas. The celebration of the partnership between scientists and HD families has taken an unexpected turn this year and also became a celebration of the history of…

Gratitude Day Donations! See a summary video of Factor-H and collaborators programs in Venezuela in 2023 On March 23, 1993, a landmark Cell article was published, describing that the mutation in the gene responsible for Huntington’s disease had been identified for the first time. This discovery was possible thanks to…

On September 3, 2023, at The Lodge Room in Los Angeles, about 200 people gathered in an evening of solidarity with HD families living in poverty in Latin America, to celebrate the contributions of many of these families to the identification of the HD mutation in the 1980s and 1990s.…

22 humanitarian organizations = 1 common purpose: to help families in Venezuela Arepa Day is a campaign aimed at improving access to health and nutritional services for Venezuelan families. Global Giving, the non-profit organization that supports other foundations, has selected 22 US-based non-profit foundations focused on helping Venezuelan causes, to…

On September 03, 2023, Miner band will perform at The Lodge Rooms in Los Angeles, a benefit concert to raise funds for Venezuelan families affected by Huntington’s disease, as a way to thank them for their contributions to the identification of the mutation that causes HD in 1993. Miner is…

Miner is a folk-rock, family band based in Los Angeles, formed by husband and wife Justin & Kate Miner along with Justin’s brother Jeremy Miner. After self-producing their debut album Into The Morning (2014) in a spare bedroom with a single microphone, singles “Hey Love” and “Carousel” quickly racked up…

Today, November 29th is #givingtuesday, please think about people with Huntington in Latin América when giving your donations! Remember, GivingTuesday is a global generosity movement that unleashes the power of radical generosity around the world. Millions of people come together to celebrate generosity, share kindness, and drive record-breaking giving again…

Everyone can make a contribution to help those most affected by Huntington’s disease. In this brief post, we wanted to thank Dr. Iván Angulo for his commitment to rare disorder research. Iván is a former colleague of Nacho who reached out to raise funds for our Venezuelan colleagues suffering from…