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Factor-H September 2023 trip to the Maracaibo HD communities​

Factor-H September 2023 trip to the Maracaibo HD communities​

From September 6-14, 2023, Factor-H visited the HD communities in Barranquitas and San Luis and conducted medical, educational and humanitarian activities with volunteers and affiliated organizations. Below you can see a video summarizing the trip and a detailed diary of our visit.Text by Marina Gonzalez de Kauffman & Ignacio Muñoz-SanjuánVideo…
MINER: an evening of gratitude concert for the benefit of HD families living in poverty

MINER: an evening of gratitude concert for the benefit of HD families living in poverty

On September 3, 2023, at The Lodge Room in Los Angeles, about 200 people gathered in an evening of solidarity with HD families living in poverty in Latin America, to celebrate the contributions of many of these families to the identification of the HD mutation in the 1980s and 1990s.…
Miner Band

Miner Band

Miner is a folk-rock, family band based in Los Angeles, formed by husband and wife Justin & Kate Miner along with Justin’s brother Jeremy Miner. After self-producing their debut album Into The Morning (2014) in a spare bedroom with a single microphone, singles “Hey Love” and “Carousel” quickly racked up…
Gratitude Day - Video interviews from Spain

Gratitude Day - Video interviews from Spain

Ruth Blanco, president of the HD association in Spain & coordination of the European Huntington’s (EHA) program ‘Moving Forward‘ for Spain, conducted a series of interviews to support Factor-H Gratitude Day campaign. Ruth interviewed several scientists and family advocates from Europe, the USA and Venezuela, including Ignacio Muñoz-Sanjuán, to discuss…
Seminario del Dr. Muñoz-Sanjuán en la reunión de la sociedad de Neurología venezolana

Seminario del Dr. Muñoz-Sanjuán en la reunión de la sociedad de Neurología venezolana

Seminario del Dr. Ignacio Muñoz-Sanjuan, fundador de Factor-h, en la reunión anual de la sociedad venezolana de neurología, el 3 de junio 2023. Ignacio habla sobre programas terapéuticos actuales para la enfermedad de Huntington, comentando información actual de todos los programas sintomáticos y aquellos dirigidos a disminuir la expresión de…
GRATITUDE DAY 2023

GRATITUDE DAY 2023

Gratitude Day 2023 was a success! The gratitude day campaign was adopted by many families, patient associations, friends of HD families, clinicians and scientists working on behalf of HD families. Below you can see a video of all the social media posts from these special and caring individuals who joined…
2022HDLatam Conferences Day 2-C5: Marina González de Kaufman

2022HDLatam Conferences Day 2-C5: Marina González de Kaufman

From October 19 to 21, Factor-h organized in Barranquilla, Colombia, the 2022 Huntington Latin American Conference with the presence of 35 speakers, among them scientists, researchers, experts in different health fields, HD associations, patients, and families. In her conference on October 20th, architect Marina González de Kaufman, President of Fundación…
2022HDLatam Conferences Day 2-C4: Vladimir Marcano

2022HDLatam Conferences Day 2-C4: Vladimir Marcano

(Conference below) From October 19 to 21, Factor-h organized in Barranquilla, Colombia, the 2022 Huntington Latin American Conference with the presence of 35 speakers, among them scientists, researchers, experts in different health fields, HD associations, patients, and families. In his conference on October 20h, Vladimir Marcano, a Venezuelan documentary photographer…
Factor-H featured in the Moving Along magazine of the Movement Disorder Society

Factor-H featured in the Moving Along magazine of the Movement Disorder Society

The work Factor-H implements in Latin America is being recognized by the Movement Disorder Society, the main neurology association that deals with all aspects clinical and scientific with movement disorders. In their February 2023 issue of their magazine, Moving Along, Factor-H 2022 HD conference was highlighted. PLease take a look…
Venezuela: 2022 Holidays

Venezuela: 2022 Holidays

Today, Monday December 26, 2022, was a beautiful day in San Luis, in Maracaibo. Everything started early today … the work of shopping for the Christmas events, packing, and ordering everything to get it organized for all the children we sponsor. Then, we packed our truck, filled to the brim…
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