Some pictures to end the year and welcome a new one

Some pictures to end the year and welcome a new one

We are very fortunate at Factor-H to count on the friendship and talent of amazing individuals working in the visual arts. Over the years, documenting the lives of people with Huntington’s disease in their communities has been essential to our mission – if we can’t capture the humanity behind the…
Video: Last day of the year donation...

Video: Last day of the year donation...

Today is the day. 2021 has not been an easy year. But for people with HD in Latin America things were much more difficult. We end the year with a last-day donation campaign based on hope. The hope we bring together to the HD families from South America. Emmy Award…
Día Mundial del Huntington: ciclo de conferencias desde Colombia el sábado 20 de Noviembre, 2021

Día Mundial del Huntington: ciclo de conferencias desde Colombia el sábado 20 de Noviembre, 2021

Como conmemoración del día mundial de Huntington, que fue el 13 de Noviembre, miembros de la junta directiva de Factor-H, junto con la Universidad de Antioquia y nuestros colegas el Dr. Saúl Martinez Horta de Barcelona, Arnel Arroyo y Greis Erazo de Colombia, y Marina Gonzalez de Kauffman de Venezuela,…
Meet Ignacio - a CRL interview

Meet Ignacio - a CRL interview

Meet our second disruptor Ignacio Muñoz-Sanjuán. Find out how Ignacio’s work is enabling organizations to develop novel therapies for Huntington’s disease. Through his drug discovery work at CHDI Foundation, a nonprofit organization, Ignacio fuels his motivation to uncover potential treatments and an eventual cure for this crippling transgenerational disease by…
Charlie Cordero, Colombian photographer joins our Art4HD program

Charlie Cordero, Colombian photographer joins our Art4HD program

BRIEF BIOGRAPHY Charlie Cordero is a 31-year-old documentary photographer based in Colombia. He has studied Photojournalism at the ERAM audiovisual and multimedia school (University of Girona) in Girona, Spain and a Masters in Editorial Photography and Photojournalism at the TAI School of Arts and Entertainment (Rey Juan Carlos University) in…
Tackling Huntington’s Disease from All Angles

Tackling Huntington’s Disease from All Angles

One Scientist’s Journey to Change the Status Quo Even with the strides in research that scientists have made in the last few decades, the innerworkings of the brain remain a mystery. Neurological diseases like Huntington’s, Parkinson’s,and Alzheimer’s are just three out of many potentially devastating diagnoses clinicians havethe difficult task…
New podcast from CRL describes Factor-H

New podcast from CRL describes Factor-H

A few weeks ago, the scientific organization Charles River Laboratories (CRL) did a series on ‘inspiring scientists’ that showcase their work. Our President, Ignacio Muñoz (nacho) was featured in a documentary and a podcast. The podcast is now out. In it, Nacho is interviewed about his scientific work and the…
Surveys of Affected Regions - tracking families as the first step to advocacy

Surveys of Affected Regions - tracking families as the first step to advocacy

In spite of the fact that the regions flanking Lake Maracaibo in Venezuela, the Caribbean Coast of Colombia and the province of Cañete, in Perú, have the highest incidence of HD in the world does not mean we know how many people are affected or at risk. The work conducted…
Legal assistance program

Legal assistance program

The legal assistance program has been operating informally in Colombia and Venezuela for a few years. Recently, Factor-H decided to establish a more structured effort to reach more families and have more of an impact. In Colombia, Factor-H works with volunteer lawyer Carlos Enrique Diaz, who has been assisting families…
An evidence-based clinical consensus for Latin America

An evidence-based clinical consensus for Latin America

Objectives of the Clinical Practice Guidelines for the Management of Huntington’s Disease in Latin America In 2020, Factor-h obtained a grant from Roche for a project to generate an evidence-based clinical consensus for Latin America countries. The general objective of this consensus is to approach the health problems and improve the…
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