Program "Abrazos"

Program "Abrazos"

Program “Abrazos” is an ongoing program in Colombia since 2015 (40 children as of 2020), and also in Venezuela since 2019 (120 children as of 2020). This program covers basic assistance – food, clothes, school supplies, dental and medical access. Additionally, program covers recreational and educational events every 6 months…
Art 4 HD - collaboration with illustrator Matt Rota

Art 4 HD - collaboration with illustrator Matt Rota

Matt Rota is an illustrator who has recently become associated with our kids’ program at Factor-H. Below are some of the illustrations he created recently for some poems I wrote about the kids to commemorate the completion of the 5th year of the program in Colombia. What began as an…
Meet Brayan - the video

Meet Brayan - the video

<br /> A few months ago I wrote a story about meeting Brayan, a young kid at risk for HD from Barranquitas, Venezuela (see blog post “Reflections on instilling a sense of hope”). Together with colleagues Matt Rota (https://www.mattrotasart.com) and Nicanor Cardeñosa, we put together a narrated illustrated story of…
Reflections on instilling a sense of hope

Reflections on instilling a sense of hope

What is the difference between having no hope and having hope? Meet Brayan, a 13-year old boy I met when visiting the town of Barranquitas, in Venezuela, in December 2018, the last time I was able to visit. This town is a forsaken, isolated village where in every corner one…
Project Abrazos completes 5 years bringing hope to kids at risk for HD

Project Abrazos completes 5 years bringing hope to kids at risk for HD

The project ‘Abrazos’ (Hugs) started in 2015 and it aims to provide donations for children in Colombia and Venezuela living in families affected by HD and in extreme poverty conditions. Their family situation is dire and many of the kids have been abandoned by one of their parents. Often times,…
Factor-H and Fundación Habitat LUZ from Maracaibo start working together

Factor-H and Fundación Habitat LUZ from Maracaibo start working together

MEETING BETWEEN THE MARACAIBO PATIENT ASSOCIATIONS, FACTOR-H AND FUNDACION HABITAT LUZ … THE BEGINNING OF OUR EFFORTS TO BRING CHANGE TO THE COMMUNITIES MOST AFFECTED BY HD IN THE WORLDHappy New Year 2018!On Monday December 11th, we held an all-day meeting in the offices of Fundacion Habitat Luz, a Maracaibo,…

Olver

A life gone too soon Last week we lost a friend and a very special person. A life story that would have remained untold. He is one of the forgotten children of the world, a life made difficult by poverty, by Huntington’s disease, and by social neglect. His story, now…
Start of 'Proyecto Abrazos' - The Children's Project

Start of 'Proyecto Abrazos' - The Children's Project

Sábanas de San Angel – this past April. We pulled in with Fermín’s car loaded with food, hammocks, and clothes. The scenery was arid – this region has suffered from a profound drought for a while now, and everything is dried up. The Cañahuate trees the only bright color amidst…