Gratitude Day took place on March 23rd, 2025 and culminated a week of events in Venezuela to honor the contributions of the Venezuelan families to the advancement of science and medicine. Factor-H, working alongside Habitat LUZ, volunteers from the community and health professionals, hosted a series of events ranging from…

“Gratitude Day is a way to honor the collaboration of HD families with clinicians and scientists, which started with the efforts to identify the Huntington’s disease gene in the 1980s, and that continues to these days through various efforts around the world to find treatments for the disease”March 23rd is…

On November 07, 2024, Factor-H will host a fundraising event in Los Angeles to support our ongoing programs in Latin America.Factor-H is proud to present the US premiere for two documentary films about Huntington’s disease – The Light (The story of the Informal Caregivers for Huntington’s patients in Barranquitas, Venezuela, by Gindel…

We are honored to be 1 of 5 finalist nonprofit organizations being nominated for this prestigious award, selected out of 90 applicant organizations. The award of US$150,000 will be given to one of the five finalists.  The Amgen Prize 2024 rewards innovative in rare disease patient care.  Factor-H submitted an…

Ruth Blanco, president of the HD association in Spain & coordination of the European Huntington’s (EHA) program ‘Moving Forward‘ for Spain, conducted a series of interviews to support Factor-H Gratitude Day campaign. Ruth interviewed several scientists and family advocates from Europe, the USA and Venezuela, including Ignacio Muñoz-Sanjuán, to discuss…

Gratitude Day 2023 was a success! The gratitude day campaign was adopted by many families, patient associations, friends of HD families, clinicians and scientists working on behalf of HD families. Below you can see a video of all the social media posts from these special and caring individuals who joined…

The work Factor-H implements in Latin America is being recognized by the Movement Disorder Society, the main neurology association that deals with all aspects clinical and scientific with movement disorders. In their February 2023 issue of their magazine, Moving Along, Factor-H 2022 HD conference was highlighted. PLease take a look…

We are very fortunate at Factor-H to count on the friendship and talent of amazing individuals working in the visual arts. Over the years, documenting the lives of people with Huntington’s disease in their communities has been essential to our mission – if we can’t capture the humanity behind the…

Today is the day. 2021 has not been an easy year. But for people with HD in Latin America things were much more difficult. We end the year with a last-day donation campaign based on hope. The hope we bring together to the HD families from South America. Emmy Award…

Meet our second disruptor Ignacio Muñoz-Sanjuán. Find out how Ignacio’s work is enabling organizations to develop novel therapies for Huntington’s disease. Through his drug discovery work at CHDI Foundation, a nonprofit organization, Ignacio fuels his motivation to uncover potential treatments and an eventual cure for this crippling transgenerational disease by…