Alex Fisher is an occupational therapist specialized in caring for HD patients from the UK; she works actively with various working groups as part of EHDN, the European HD Network. She visited for the first time the HD communities in Venezuela, together with the Factor-H team, in September 2023. Alex…

On September 3, 2023, at The Lodge Room in Los Angeles, about 200 people gathered in an evening of solidarity with HD families living in poverty in Latin America, to celebrate the contributions of many of these families to the identification of the HD mutation in the 1980s and 1990s.…

Elena Cattaneo, leading scientist in HD research and a Senator for Life in Italy, has written this piece for the newspaper La Reppublica, detailing the identification of the cloning of the mutation that causes HD. Dr. Cattaneo is a consultant for Factor-H and a dear friend and supporter.  In this…

Ruth Blanco, president of the HD association in Spain & coordination of the European Huntington’s (EHA) program ‘Moving Forward‘ for Spain, conducted a series of interviews to support Factor-H Gratitude Day campaign. Ruth interviewed several scientists and family advocates from Europe, the USA and Venezuela, including Ignacio Muñoz-Sanjuán, to discuss…

Dilia was born in San Martin of Loba, a municipality located north of the department of Cesar, Colombia. Her parents were Florentino and Ernestina. She met her husband, Valentin, who was also her cousin, at a dance when she was young, and they felt immediately in love. They had twelve…

Gratitude Day 2023 was a success! The gratitude day campaign was adopted by many families, patient associations, friends of HD families, clinicians and scientists working on behalf of HD families. Below you can see a video of all the social media posts from these special and caring individuals who joined…

Hace unos días hubo una emergencia en Colombia. Desde España oigo como Nacho me cuenta desde Los Ángeles que acababan de estar “apagando un fuego”. Su nombre es Nelson, y es querido. Ha tenido una recaída. Es como si una pequeña red invisible e infinita nos uniera a todos. No…

Nelson Echeverría is 49 years old and he is one of the HD individuals we assist. He is a wonderful person and always receives our social workers with a big smile. He lives in the outskirts of the town of Saco in the Atlántico department in Northern Colombia. He lives…

Finally the Factor-H team got together in Colombia in April 2022, after a hiatus of two and a half years. During the trip, Ignacio Muñoz and Roger Cachope went to visit the families and kids we support on the Caribbean states, and spent 8 days traveling from town to town…

Everyone can make a contribution to help those most affected by Huntington’s disease. In this brief post, we wanted to thank Dr. Iván Angulo for his commitment to rare disorder research. Iván is a former colleague of Nacho who reached out to raise funds for our Venezuelan colleagues suffering from…